Conference Agenda

Free concert for all participants and the people from Bern and around.
The concert takes place in the Französische Kirche Bern (French Church Bern)
- with the choir of the Kirchenfeld Gymnasium Bern
- with the instrumental ensemble of the Kirchenfeld Gymnasium Bern
- with the cello quartet of the Swiss Medical Orchestra SMO
- with Martin Hostettler, tenor

Announcement of the PHPCI Community Building award winner
Language: English

The poster walk starts at 1:15 PM at the entrance to the poster exhibition
Chair: Libby Sallnow, United Kingdom
Chair: Joachim Cohen, Belgium

Start: entrance of Kornhauskeller

"Life in view, end in sight' is the motto of a walk on the subject of the end of life, which takes you from the cathedral platform to the Bernese Generation House. We will hear about the customs and rituals of the past, as well as the latest regulations on the end of life - a moving history, a festival of ideas and a cause that brings generations together. The tour ends where some ideas are put into action, and where you will find yourself asking questions you have never asked before.

Announcement of the PHPCI Research Impact award winner
Language: English

with
- Marie Charlotte Bouësseau, former Team Leader at the WHO Integrated Health Services Department
- Anne Lévy, Director-General of the Federal Office of Public Health (FOPH), Switzerland
- Christian Ntizimira, Executive Director of African Center for Research on End of Life Care (ACREOL), Rwanda

Language: English

The meeting point: entrance of Kornhauskeller.
In case of bad weather the event will take place in the French Church / Französische Kirche.

The poster walk starts at 1:15 PM at the entrance to the poster exhibition
Chair: Kelli Stajduhar, Canada
Chair: Carol Tishelman, Sweden

Free festival for all participants and the people from Bern and around.
Opening speech at 4pm on the stage at Zeughausgasse.

Location: Kornhausbibliothek / Kornhaus library (3rd floor of Kornhaus)

The interactive exhibition invites us to reflect on our transience and what comforts us in moments of grief and despair. We will also gain an insight into the conception and stories of the new hidden object book by palliative care physician and family grief counselor Sophia Bartenstein and book illustrator Andrea Peter.

Announcement of the PHPCI Early Career award winner
Language: English

From the beginning and the end. Take some time for yourself and immerse yourself in the beautiful, peaceful atmosphere at the Bremgarten cemetery. Take a walk along the path of reflection with a guided tour by Barbara Shankar. You willl encounter philosophical, poetic, comforting and encouraging texts and impulses for dealing with the subject of life and death.

Bremgartenfriedhof (cemetery) can be reached by public transport from the main train station (up stairs near the parking). Take bus (Post Auto) #100 or 101, destination Bremgartenfriedhof. Parking for private cars is limited. Meeting Point: main office

The Digital Legacy Conference 2024 will take place as part of PHPCI. It is an annual conference that explores and celebrates the positive impact technology can have within the end of life and bereavement.

Attendees will learn about emerging best practices in areas relating to digital assets planning and digital legacy safeguarding. It is free to attend for all PHPCI badgeholders.

Agenda
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13:50 Welcome message from the Digital Legacy Association
This year's MC's are James Norris (The Digital Legacy Association & MyWishes) and Cale Bole (a digital thanatosensitivity (the design of products that anticipate the eventual death of the user) researcher and Masters student
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14:00 Understanding the use of digital technologies in public health palliative care
• Dr Jason Mills is an Associate Professor at the Flinders University Research Centre for Palliative Care, Death and Dying. He holds fellowships with the Royal Society for Public Health, Higher Education Academy, and is Editor-in-Chief for the international journal Progress in Palliative Care
• Professor Shyla Mills is the CEO at Palliative Care South Australia (PCSA)
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14:25 Public Health approaches to Digital Assets, Digital Legacy and Digital Bereavement
• James Norris, Founder of The Digital Legacy Association & MyWishes. Digital Research Fellow at Harlington Hospice & Design Research Fellow at the Velindre Cancer Centre.
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14:50 Meta and Facebook’s approaches to memorialisation
• Emilar Gandhi, Head of Stakeholder Engagement for Policy Development within Meta’s Trust and Safety Policy
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15:15 Opportunities and Risks of the Digital Afterlife: results from a comprehensive Swiss Technology Assessment Study
• Dr. Jean-Daniel Strub: Dr. of theology; independent ethics researcher and consultant; clinical ethicist
• Prof. Dr. Ralf J. Jox: Professor of biomedical ethics, neurologist and palliative care specialist at the University of Lausanne (Chair of Palliative Geriatric Care/University Hospital Lausanne)
• Prof. Dr. Francesca Bosisio: professor of management and public health; specialist in advance care planning and advance directives
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15:40 Navigating Digital Remains: Ethical Challenges and Cultural Perspectives from Japan
• Professor Akiko Orita, Japanese scholar based in Japan, holds a Ph.D. from Keio University and has served as faculty at Chuo University, Keio University, and Kennesaw State University. She is currently a Professor at Kanto Gakuin University. Her research focuses on privacy, digital identity, and the ethical handling of data after death
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16:05 Importance of Digital Inheritance During Natural Disasters
• İlayda Yılmaz Murat, PhD Candidate at Bilkent University Graduate School of Economics and Social Sciences. She completed her LL.M. degree with the Master’s Thesis titled “Digital Inheritance”. She studies in the field of Civil Law.
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16:30 Governance of the Digital Afterlife
• Khadiza Laskor, PhD Student at the University of Bristol’s Cyber Security Centre for Doctoral Training Programme
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16:55 Closing remarks
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17:00 close
17:00 onwards (Meet-up, Food and Drink)