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Workshop 5b: Africa in the spotlight: empowerment of people and communities
Time:
Thursday, 24/Oct/2024:
2:00pm - 3:30pm
Location:Hotel Kreuz - Room "Fischer"
Language: English
Presentations
Africa in the spotlight: empowerment of people and communities.
Fernanda Vieira Bastos1, Vilma Tripodoro1, Christian Ntizimira2
1University of Navarra, Spain; 2African Center for Research on End of Life Care
WORKSHOP
Target Audience: policymakers, stakeholders for LMICs, health professionals, volunteers, the general public, NGOs
Learning Objectives: WHO Conceptual framework on PC development, variety of empowerment of people and communities in the LMIC context, building-up strategies together in Africa.
Structure of the Workshop: After the introduction of the workshop’s objectives and participants (moderator Dr Vilma Tripodoro, Argentina/Spain), we will start with three short presentations, 10 minutes each, related to different aspects of empowerment of people and the community dimension.
The new dimension of WHO conceptual framework on PC development: Empower People and Communities and its outlook in Africa. (Dr. Fernanda Bastos, Brazil)
Empower Paediatric PC Communities in Africa: how does it differ from adult communities? (Dr. Julia Downing, Uganda - to be confirmed)
Palliative care empowerment in Africa: the last 20 years experience. (Dr. Christian Ntizimira, Rwanda).
Breakouts into small working groups discussing strategies for mapping local and/or regional organizations, building regional hubs and creating possible action plans to maintain a living collaborative network between all different stakeholders in the PC context. This 10-minute task will be followed by 5 minutes of SWGs exposition of their outcomes. The moderator will highlight the endpoints and close the session.
Reasoning:
In 2021, WHO launched a new conceptual framework for PC development. This compounds six core dimensions of fundamental and equal importance. One novelty in this conceptual framework is the inclusion of 2 new dimensions: Research and EMPOWER PEOPLE AND COMMUNITIES. Giving voice to patients, families and communities helps health services, policies and research be more responsive and effective to population needs. This conceptual framework involves macro indicators to be assessed by stakeholders. It highlighted the existence of groups dedicated to promoting the rights of patients in need of PC, their caregivers, and disease survivors, in addition to the existence of national policy or guidelines addressing ACP of medical decisions for the use of life-sustaining treatment or EoL care. A constructive discussion from theoretical grounds with life-experienced participants should be fundamental for strengthening PC in the global healthy community.
