| Session | ||
Workshop 1b: Connecting communities in palliative care: Using a design science approach for co-developing humility guidance
Language: English
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| Presentations | ||
Connecting communities in palliative care: Using a design science approach for co-developing humility guidance 1Centre for Humanitarian Leadership, Deakin University, Australia; 2Community representative, USA; 3School of Nursing and Public Health, Manchester Metropolitan University, UK; 4Division of General Internal Medicine, University of Colarado School of Medicine, USA; 5Johns Hopkins School of Nursing, USA Target audience: About us: We are a group of palliative care practitioners, researchers and community members from different backgrounds, working with diverse populations. Our work spans people experiencing humanitarian crisis, homelessness and substance abuse, and those often marginalized in access to care including LGBQTIA+ and ethnically diverse communities. We connected through shared experiences of partnering with, and learning from, different populations in how people and communities want to be seen and cared for, elements that are often lost in a quest for palliative care specialization and standardization. We found mutual connection in understanding our role as guests, witnesses and learners, not experts and teachers, to illness suffering and caring. We hold a common ambition to center compassion and humility in caring and research practice. Our process: We have begun a process in collaboration with our research partners, using a design science approach, of collating and translating our observations, stories, and lessons into explicit guidance for palliative care practice and research that is compassionate and humble in conception and delivery. Our invitation: We invite all those looking to reimagine and refocus palliative care practice and research towards genuine partnerships and human connection to contribute to the design of a Humility Reflection Guidance and be future partners with us in this endeavor. Learning objectives: 1. Provide a forum for sharing stories, perspectives, and lessons on connection, compassion and humility in palliative care practice and research across diverse communities and populations. 2. Use a design science approach to extract explicit principles from implicit knowledge and experience, to build and develop consensus around a Humility Reflection Guidance amongst workshop participants. Structure of the workshop: 1. Presentations on palliative care across marginalized populations and diverse settings, with researcher perspectives on what we have learned, how we have been personally changed by the people and communities with whom we have worked, and the common threads across our work. 2. Description of the design process to draft a Humility Reflection Guidance. 3. Facilitated group discussion using a design science approach to build consensus on a Humility Reflection Guidance. After the conference, we will finalize and share the guidance with participants for review, with a plan for wider dissemination of our conclusions. | ||