Conference Agenda

The impact of area deprivation on access to and utilization of health services in the last year of life: a retrospective population based cohort study

Jackie Robinson, Bert van der Werf, Daniel Exeter, Jinfeng Zhao, Janine Wiles, Merryn Gott

“I don’t know what options there are”: Indigenous families’ experiences with cancer and assisted dying in Aotearoa New Zealand

Tess Huia Moeke-Maxwell, Jackie Robinson, Lisa Williams, Jeanette Scurr, Tau Huirama

What matters to Pakistani women during dying, death, grief and caring at the end-of-life: an intersectional participatory study

Mariam Fargin, Inayah Sher, Shabina Bashir, Samina Begum, Jamilla Hussain

Developing the Intervention to optiMise Palliative caRe for peOple with liVed Experience of homelessness (IMPROVE)

Briony Hudson, Caroline Shulman

"Living well until the end" - promoting death literacy for older people with a migration biography and/or a precarious socio-economic background

Anna-Christina Kainradl, Klaus Wegleitner

Queering the death system – perspectives from LGBTQ+ people in Sweden

Max Kleijberg, Lars E. Eriksson

Access to palliative care in India: a time to travel analysis of 526 non-governmental palliative care facilities in India.

Parth Sharma, Harsh Thakkar, Aryan Patil, Siddhesh Zadey, Priya Chembon, Preeti Chauhan, Raj Kalady, M R Rajagopal

Improving access to and delivery of palliative care for underserved populations: a 5-year research program

Jaklin Ardath Eliott, Gillian Harvey, Kate Gunn, Anna Chur-Hansen, Gregory Crawford, Caroline Laurence, Clemence Due, Ann Dadich, Lucie Walters, Ali Lakhani, Timothy To, Linda Foreman

Co-development of recommendations to improve access to care for structurally marginalized people with life limiting cancers: process and outcomes

Tara Horrill, Kelli Stajduhar, Jess Crawford, Amber Bourgeois, Jagbir Kaur, Scott Beck, Leah Lambert, Michael Mckenzie, Annette Browne

Walking alongside Indigenous Peoples who are seriously ill: Education for community caregivers

Holly Prince, Jessica Wyatt, Kassandra Fernandes

Findings from Ireland’s first National End of Life Survey; a survey of bereaved relatives on care provided to family members and friends in the last three months of life

Donnacha O' Ceallaigh, Conor Foley, Tracy O' Carroll, Ella Tuohy, Rachel Flynn

Grief Kind-bringing grief literacy into people's living rooms and lives

Bianca Neumann

Learning by Experience: Does caregiving for loved ones boost personal end-of-life health literacy?

Clément Meier, Maud Wieczorek, Sarah Vilpert, Carmen Borrat-Besson, Ralf J. Jox, Jürgen Maurer

Indigenous ‘dying’ gap: An auto-ethnographic reflection of one urban Indigenous family’s experience of caring for their dying mother

Tess Huia Moeke-Maxwell, Louise Lyons, Tau Huirama

Understanding the care received at the end of life through a family carer lens: analysis of free-text responses from a national post-bereavement survey in England and Wales.

Joanna Goodrich, Sophie Pask, Therese Johansson, Ikumi Okamoto, Lucy Budd, Stephen Barclay, Fliss EM Murtagh, Katherine E Sleeman

Bridging policy gaps in palliative care through political engagement: an action learning case study in Thailand

Ekkapop Sittiwantana

Keeping health care affordable - which health care components drive the cost of end of life care in hospitals?

Monika Hagemann, Steffen Eychmüller, Maud Maessen

Major discrepancy between peoples´ preferences for place of care and dying and actual place of death in Sweden.

Cecilia Larsdotter, Stina Nyblom, Hanna Gyllensten, Carl-Johan Furst, Anneli Ozanne, Ragnhild Hedman, Stefan Nilsson, Joakim Öhlén

Transferable policy solutions for supporting employed end of life family caregivers: Canadian Compassionate Care Benefit

Clare Gardiner, Kelli Stajduhar

“Why should I care?”: an audience reception study of public awareness campaigns on palliative care.

Marjolein Matthys, Kenneth Chambaere, Benedicte Deforche, Luc Deliens, Joachim Cohen, Leen Van Brussel, Kim Beernaert, Naomi Dhollander

Death Literacy Index: the development of the short form DLI-9

Kerrie Noonan, Andrea Grindrod, Sumina Shrestha, Sora Lee, Rosemary Leonard

Understanding death literacy in Birmingham city

Emma Hodges

Death literacy as a basis for dealing with death and dying in German-speaking regions

Kerstin Kremeike, Sophie Meesters, Raymond Voltz

Translating and adapting the Death Literacy Index in Belgium, the Netherlands and Sweden: characteristics and challenges

Therese Johansson, Steven Vanderstichelen, Carol Tishelman, Åsa Olsson, Corine A. Nierop-van Baalen, Marieke Groot, Lars E. Eriksson, Ida Goliath, Joachim Cohen

Places of solace: a starting point for a Compassionate Community?

Sarah Dury, Bert Quintiens, Louise D'Eer, Hanne Bakelants, Joachim Cohen

Relationships while living with life limiting illness: What can Compassionate Communities offer?

Tess Cassidy, Liz Forbat, Sally Boa, Sarah Wilson

InVita! Pathways and actions for the creation of Caring Communities: discover, asses, focus, and commit

Silvia Tanzi, Elisabetta Bertocchi, Giulietta Luul Balestra, Ludovica De Panfilis, Martina Fiaccadori, Gabriele Bedini, Loredana Buonaccorso, Silvia Bertolotti, Cinzia Cavalli, Irene Barbieri

Willingness to support neighbours practically or emotionally: A cross-sectional survey among the general public

Bert Quintiens

Facilitators and barriers to developing Compassionate Neighbourhoods

Louise D'Eer, Kenneth Chambaere, Lieve Van den Block, Sarah Dury, Luc Deliens, Tinne Smets, Joachim Cohen