Conference Agenda
Overview and details of the sessions of this conference. Please select a date or location to show only sessions at that day or location. Please select a single session for detailed view (with abstracts and downloads if available).
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Agenda Overview |
| E-posters: Overview of all e-posters Please log in to view the e-posters
Effectiveness of palliative and hospice care basic training manual on non-health and health practitioners’ level of knowledge in the Philippines: A preliminary study Gender, family dynamics and end of life wishes Reimagining death care for our ageing population Use and deprescribing of direct oral anticoagulants in Palliative C are The missing cancer and palliative care in displaced community in Northeast of India Rethinking palliative care from a sustainable perspective Development of a psychoeducation tool about dementia grief for German mental health providers Compassionate Communities for All from Children to the Elderly throughout Japan Evaluating outcomes of ACP interventions for adults living with advanced illness and people close to them: a meta-review Reflections on co-producing palliative and end of life care research with co-researchers with lived experience of homelessness The model development of compassionate community in Thailand from the study of Kalasin municipality compassionate community-based palliative care service for the end of life elderly patients and their families Celebrating Life: An innovative community engagement project with minoritized ethnic populations living in areas of socio-economic deprivation in North London: A Service Evaluation Demographic profile of end of life family caregivers in the UK: an observational study Pediatric palliative care needs in the Canton of Bern Switzerland Palliative Care Services Among Hospitalized Children with Serious and Life-Limiting Conditions in the U.S. Play needs of children with palliative care needs: a Q methodology study The safari concept: an african framework for end of life care 'It's more than rainbows in receptions' - Working with LGBTQ+ People in Palliative and End-of-Life Care A caregiver's coping process with the end-of-life care of a patient with cancer at home: a case study Advance care planning and palliative care for an adolescent with acute myeloid leukemia Compassionate brereton and ravenhill Developing Compassionate Community with ‘community connectors’ Facing Death Impact of an ‘End-of-Life Education’ Training Course on Knowledge and Attitudes of Nurses and Patient Care Assistants in a Nursing Home Intergenerational Conversations about LGBTQ+ Needs at the End-of-Life – Reflections From Sweden Palliative care in the acute setting Quantifying clinical load and role for Generalist Palliative Care in COVID 19 patients results from a cohort study on the Predictors of High Opioid and Benzodiazepine use In COVID 19 patients (PHOBIC) Reflection from college students after a designed interactive speech of advance care planning: A qualitative study with theme analysis by large language model At the End Diversity. A project to integrate volunteers with migration background into activities of a hospice movement in Germany. Concern and care needs of older patients in South Australian rural public hospitals Cross-cultural equivalence of construct validity of the Death Literacy Index in Belgium, the Netherlands, and Sweden Disparate trends in place of death for people with different cancer types: a national population–based study End-of-life preferences among different forms of engagement in advance care planning EU Navigate training prepares navigators in European countries to support older persons with cancer living at home Experiences of care in the last three months of life: findings from a nationally representative post-bereavement survey in England and Wales How tattoos contribute to connection and healing Place of Death Among Children: a population based study from Sweden Unsung heroes of COVID-19’: Funeral directors’ compassionate cultural care of bereaved Māori whānau and communities during COVID-19 Working with communities: Helping you to live well as long as you can (promoting death literacy in ethnic minority communities) PREPARE: Evaluation of Electronic Palliative Care Coordination Systems to support advance care planning for people living with life-threatening conditions: A retrospective observational cohort study "Palliative Care goes School" - Results from a Project for Upper School Classes in Vorarlberg A model of narrative medicine in palliative care: how to use it to create a compassionate city Acceptance of illness and worry about dying and their association with faith and family support among advanced cancer patients Comfort care order sets in ambulatory setting Compassionate Bunbury Charter and Toolkit: Fostering community conversations and civic actions Creating Learning Communities. An international Training of Trainers course for the promotion of death literacy in three different countries Educational approaches toward teaching palliative care to non-palliative care physicians Exploring a strengths-based approach: Challenging the deficit narrative in rural health research Governance and organisation of palliative care in cancer care in Sweden - cancer care leaders’ perspectives Healing light: The healing journey through palliative care research On the way to Dementia Literacy - introducing the dementiafriendly 3rd district, Vienna Palliative care in policy documents for adults with cancer and non cancer diseases with potential palliative care needs: A document analysis Pediatric Palliative Care – building bridges between hospital and community care for child and family Policies and advocacy toward upgrading the 2015 Philippine status from being the 3rd worst place to die in the world (78th out of 80 countries) to 38th place in the cross-country comparison of expert assessments of the Quality of Death and Dying 2021 Trends in the place of death for people with cardiovascular disease in Sweden 2013-2019 - a registry study If death was told to me - Youth literature as a creative means to discussing death |
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| Set 1: poster abstracts Exploring the hope experience and quality of life among dyads of people and their informal caregivers living with chronic obstructive pulmonary disease in Switzerland: First results from qualitative data analysis A grassroots approach to Compassionate Communities Compassionate Libraries: building compassionate communities with our local libraries. Death Literacy in Australia: Did COVID-19 and the introduction of Voluntary Assisted Dying have an impact? Enhancing access to sexual and reproductive health services among indigenous people in earthquake-affected area of Jajarkot and West Rukum district, Nepal The Facing-Death Project - A Community-Based Collaborative Art Initiative to Enhance End-of-Life Care Engagement: a pilot study ‘De Kolibrie’, a compassionate place Perceived quality, difficulties, and needs for End-of-life care at home: Perspectives of Thai patients and family caregivers How tattoos contribute to connection and healing Experiences of care service use in the last three months of life: findings from a national post-bereavement survey in England and Wales Acceptance of illness and worry about dying and their association with faith and family support among advanced cancer patients Implementability of an evidence-informed BEereavement SupporT pathway in Swiss specialized palliative care (BEST for Family): Pre-implementation analysis of palliative care staff perceptions Challenging issues perceived by Japanese visiting nurses in implementing advance care planning and realizing death at home Cultural identities in palliative care research: A critical reflection on defining and categorising minority ethnic groups in end-of-Life care COMPASSIONATE CASCAIS Community project to promote the culture of compassionate care By Associação Oficina da Compaixão PREPARE: Evaluation of Electronic Palliative Care Coordination Systems to support advance care planning for people living with life-threatening conditions: A retrospective observational cohort study Perspectives on Needs and Barriers to Home-Based End-of-Life Care Delivery in Thailand Developing accessible and culturally relevant palliative care education for Indigenous communities in Canada Using strengths-based approaches in rural health research and their application to improving the provision of rural palliative care: A scoping review. Intergenerational conversations about LGBTQ+ needs at the end-of-life – reflections from Sweden The model development of compassionate community in Thailand from the study of Kalasin municipality’s community-based palliative care service for the end of life elderly patients and their families Destigmatising palliative care within the peer group of young adults: Systematic review and ideas for interventions in the context of public health Place of Death Among Children: a population-based study from Sweden End of life doulas and the value of death - communication, advocacy, presence EU-Navigate training prepares navigators in European countries to support older persons with cancer living at home Disparate trends in place of death for people with different cancer types: a national population-based study Compassionate Bunbury Charter and Toolkit - Fostering community conversations and civic actions Play needs of children living with palliative care needs: a Q methodology study Overcoming challenges: Palliative care delivery for COPD patients in urban slums - Lessons learned and future directions Caregiver burden, Anxiety, and Depression on the level of quality of life among primary caregivers of cancer patients in selected institutions in Metro Manila: An Explanatory Sequential Mixed Method Study How to produce a health-oriented nursing practice in home-based palliative care? Results from a narrative inquiry Integration of Palliative Care in Nephrology: A benefit for patients and relatives as well as economically. What we can learn from Australia Psychosocial Rehabilitation Trajectory of Stroke Survivors (PReTS): An overview of systematic reviews of recovery needs and non-death losses End-of-life preferences among different forms of engagement in advance care planning Understanding how policies impact global access to and safe use of opioid medicines Advance Care Planning: Why are patients interested? At the End Diversity. A project to integrate volunteers with migration background into activities of a hospice movement in Germany. Head, heart and hands - elements essential in community-focused education to support grieving young people The missing cancer and palliative care in displaced community in Northeast of India Palliative care-related knowledge, attitudes & confidence in home health care: Results from a U.S. pilot study Determinants of distress among cancer patients admitted for the day care treatment at a tertiary care Cancer hospital, Amritsar, Punjab. Concerns and care needs of older patients in South Australian urban and rural public hospitals Partners in healing: fostering interdisciplinary dialogues about the role of spiritual care in healthcare Development of a psychoeducation tool about dementia grief for German mental health providers Communication styles that bring comfort during serious illness conversations: A Swiss wide study Palliative care in the acute admission setting Use and deprescribing of direct oral anticoagulants in palliative care Working with communities: Helping you to live well as long as you can (promoting death literacy in ethnic minority communities) Healing light exhibition: the healing journey through dementia research Policies and advocacy toward upgrading the 2015 Philippine status from being the 3rd worst place to die in the world (78th out of 80 countries) to 38th place in the cross-country comparison of expert assessments of the Quality of Death and Dying 2021 Person-centred palliative home care from patient- and carer-perspectives – a scoping review Advanced training program in Spiritual Care Competence: insights from Spirituality Ibero-American Forum Comfort care order sets in an ambulatory setting Public-facing education of an early palliative care approach: Impacts of the Waiting Room Revolution social movement |
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| 9:30am - 10:30am |
Registration Location: Bühnen Bern city theater / Stadttheater |
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| 10:30am - 11:00am |
Welcoming ceremony Location: Bühnen Bern city theater / Stadttheater |
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| 11:00am - 12:30pm |
Plenary 1: Connections - from compassion to self-compassion to clinical care Location: Bühnen Bern city theater / Stadttheater Chair: Philip J Larkin, CHUV /University of Lausanne, Switzerland Chair: Jason Mills, Flinders University, Australia Chair: Sofia C. Zambrano, University of Bern, Switzerland Language: English |
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| 12:30pm - 2:00pm |
Lunch break Location: Kornhauskeller |
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| 2:00pm - 3:30pm |
Plenary 2: Death literacy - how to develop, how to measure Location: Kornhausforum - Plenary hall Chair: Joachim Cohen, Vrije Universiteit Brussel, Belgium Chair: Ekkapop Sittiwantana, Compassionate Communities Research and Devlopment Institution Foundation Thailand, Thailand Chair: Carol Tishelman, Karolinska Institutet, Sweden Language: English |
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| 3:30pm - 4:00pm |
Coffee break Location: Kornhauskeller |
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| 4:00pm - 5:30pm |
D-A-CH session 1: Die Care-Transformation in den DACH-Ländern … auf dem Weg zum gemeinsamen Verständnis. Location: Le Cap - Room "Nicolas Manuel" Chair: Raymond Voltz, University Hospital Köln, Germany Chair: Veronika Schönhofer-Nellessen, Bildungswerk Aachen, Germany Language: German
Ein Buddy als zusätzliche Ressource in der Versorgung schwer und unheilbar erkrankter Menschen: Ergebnisse qualitativer Interviews mit Betroffenen und Versorgenden Improving Death Literacy in a Community: A systematic Approch Enhancing end-of-life care through community engagement and research – a study protocol Young people discovering death, dying and grief – How dialogue culture could pave the way for voluntary work in hospice care Caring Community Köln – lessons learnt so far |
Parallel Session 1a: Building equity Location: Kornhausforum - Plenary hall Chair: Therese Johansson, King's College London, United Kingdom Chair: Stephen Robert Connor, Worldwide Hospice Palliative Care Alliance, United States of America Language: English
The impact of area deprivation on access to and utilization of health services in the last year of life: a retrospective population based cohort study “I don’t know what options there are”: Indigenous families’ experiences with cancer and assisted dying in Aotearoa New Zealand What matters to Pakistani women during dying, death, grief and caring at the end-of-life: an intersectional participatory study Developing the Intervention to optiMise Palliative caRe for peOple with liVed Experience of homelessness (IMPROVE) "Living well until the end" - promoting death literacy for older people with a migration biography and/or a precarious socio-economic background |
Parallel session 1b: Supporting professional caregivers Location: Hotel Bern - Room "Unionssaal 1" Chair: Sofia C. Zambrano, University of Bern, Switzerland Chair: Luc Deliens, Vrije Universiteit Brussel, Belgium Language: English
Absence of grief care: Japanese medical professionals have no place to grieve We are all mortals – Undergraduate nursing students’ reflections following a seminar focused on proactive end-of-life communication Increasing access to primary palliative care through undergraduate education: New Zealand medical and nursing graduates’ preparation, self-efficacy and attitudes towards providing palliative and end-of-life care. Developing an appropriate model of palliative care for mainland China: exploring the application of alternative medicine in the Shanghai model "If death was told to me": Youth literature as a creative means to discussing death |
Parallel session 1c: Experiences of dying Location: Hotel Bern - Room "Unionssaal 2" Chair: Kelli Stajduhar, University of Victoria, Canada Chair: Bert Quintiens, Vrije Universiteit Brussel, Belgium Language: English
How culture shapes the relationship to death: towards an anthropological theory to track social and cultural transformations in public health approaches to death and dying The meaning of good death among Thai people “Sorry to make you think my life is a misery but I am content”: Experiences and Perceptions of Social Wellbeing among Adults Living with Advanced Illness. Revisiting Ars moriendi and Ars memorandi. End-of-Life Narratives and spiritual Meaning and legacy-making in western european end-of-Life Care. ‘Wanting to be Heard’ – A Qualitative Study of Patients’ and Nominated Healthcare Spokespersons’ Experiences of Goals of Care Discussions in Acute Care |
| Workshop 1a: “What if our last breaths could be breathtaking?”: A “walkshop” exploring parks/nature connection in palliative and grief care Location: Hotel Kreuz - Room "Hodler" Language: English
“What if our last breaths could be breathtaking?”: A “walkshop” exploring parks/nature connection in palliative and grief care |
Workshop 1b: Connecting communities in palliative care: Using a design science approach for co-developing humility guidance Location: Hotel Kreuz - Room "Fischer" Language: English
Connecting communities in palliative care: Using a design science approach for co-developing humility guidance |
Workshop 1c: How to use storytelling and gamification to communicate complex realities? The case of the Stay Room™ and palliative care Location: Le Cap - Room "Arche/Refuge" Language: English
How to use storytelling and gamification to communicate complex realities? The case of the Stay Room™ and palliative care |
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| 5:30pm - 6:00pm |
Break |
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| 6:00pm - 8:00pm |
Free classical concert: "Building Bridges" Location: French Church / Französische Kirche Free concert for all participants and the people from Bern and around. The concert takes place in the Französische Kirche Bern (French Church Bern) - with the choir of the Kirchenfeld Gymnasium Bern - with the instrumental ensemble of the Kirchenfeld Gymnasium Bern - with the cello quartet of the Swiss Medical Orchestra SMO - with Martin Hostettler, tenor |
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| E-posters: Overview of all e-posters Please log in to view the e-posters |
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| Set 1: poster abstracts |
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| 9:00am - 10:30am |
Plenary 3: The end of life in marginalized populations Location: Kornhausforum - Plenary hall Chair: Farzana Khan, University of Edinburgh / Fasiuddin Khan Research Foundation, Bangladesh, People's Republic of Chair: Kelli Stajduhar, University of Victoria, Canada Announcement of the PHPCI Community Building award winner Language: English |
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| 10:30am - 11:00am |
Coffee break Location: Kornhauskeller |
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| 11:00am - 12:30pm |
Art and culture experience 2: Rehearsal visit: the Bern Symphony Orchestra under the direction of conductor Mario Venzago Location: Casino Bern The meeting point: entrance of Kornhauskeller |
D-A-CH session 2: Die Care-Transformation in den DACH-Ländern … auf dem Weg zu einer gelebten Praxis. Location: Hotel Kreuz - Room "Anker" Chair: Elisabeth Medicus, Medical University Innsbruck, Austria Chair: Roman Rolke, Uniklinik RWTH Aachen, Germany Impulse durch Community-Projekte
Language: German
„Palliative Care goes School“ – ein landesweites Schulprojekt in Vorarlberg „Endlich. Umgang mit Sterben, Tod und Trauer“ – a project to teach coping with dying, death and bereavement in secondary schools LAUT: Letzthelfer*innen am Arbeitsplatz für einen sensiblen Umgang mit Sterben, Tod und Trauer The „Leo project“- outreach care and support for homeless people in the Innsbruck area. Raising awareness of migration issues in palliative care Sisyphos goes compassionate – the need for structure and leadership in a compassionate city |
Parallel session 2a: Accessing care Location: Kornhausforum - Plenary hall Chair: Malin Eneslätt, Luleå University of Technology, Sweden Chair: Christian Ntizimira, African Center for Research on End of Life Care (ACREOL), Rwanda Language: English
Queering the death system – perspectives from LGBTQ+ people in Sweden Access to palliative care in India: a time to travel analysis of 526 non-governmental palliative care facilities in India. Improving access to and delivery of palliative care for underserved populations: a 5-year research program Co-development of recommendations to improve access to care for structurally marginalized people with life limiting cancers: process and outcomes Walking alongside Indigenous Peoples who are seriously ill: Education for community caregivers |
Parallel session 2b: Promoting inclusion and participation Location: Hotel Bern - Room "Unionssaal 1" Chair: Emma Hodges, Compassionate Communities UK, United Kingdom Chair: Joachim Cohen, Vrije Universiteit Brussel, Belgium Language: English
Understanding caregiving for people living with cancer alongside homelessness and poverty at the end-of-life Aging and social participation in deprived communities: Dimensions of exclusion and inclusion “We are just caring for our neighbors”: Improvising community-based palliative care in Jakarta, Indonesia Identifying facilitators, barriers, and strategies to optimize recruitment of volunteer navigators for implementing a navigation intervention for older people with cancer and their families: a mixed-method study embedded in the international EU Navigate pragmatic randomized controlled trial Improving access to palliative care services in Uganda through health promoting palliative care approach: a case of mobile hospice mbararah |
| Parallel session 2c: Embracing story telling and caring cultures Location: Hotel Bern - Room "Unionssaal 2" Chair: Vilma Adriana Tripodoro, Institute Pallium Latinoamerica/ATLANTES Global Observatory of Palliative Care WHO CC, Argentine Republic Chair: Steven Vanderstichelen, Compassionate Communities Centre of Expertise, Belgium Language: English
Caring for music – an international ethnography of dying people´s creative and relational resources in palliative music therapy Refugee and migrant populations: primary and secondary loss and disenfranchisement examined through a case study Caring Cultures at the End of Life. Storytelling Cafés about End of Life as Palliative Care Research Method Confessions of a palliative medicine physician; I left the community behind. Personal transformation making a seed of compassion grow - a qualitative interview of a bereaved family member experienced home hospice care |
Workshop 2a: Evaluating Compassionate Communities initiatives: Learnings from the Compassionate Connector program Location: Hotel Kreuz - Room "Hodler" Language: English
Evaluating Compassionate Communities initiatives: Learnings from the Compassionate Connector program |
Workshop 2b: Building a compassionate Community: where do I start? Location: Hotel Kreuz - Room "Fischer" Language: English
Building a compassionate Community: where do I start? |
Workshop 2c: Away from words: Using art-making toalleviate death anxiety in the palliativecare workforce Location: Le Cap - Room "Arche/Refuge" Language: English
Away from words: Using art-making to alleviate death anxiety in the palliative care workforce |
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| 12:30pm - 2:00pm |
Lunch break incl. poster walk Location: Kornhauskeller The poster walk starts at 1:15 PM at the entrance to the poster exhibition
Chair: Libby Sallnow, United Kingdom Chair: Joachim Cohen, Belgium |
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| 2:00pm - 3:30pm |
Art and culture experience 3: Guided city walk Start: entrance of Kornhauskeller "Life in view, end in sight' is the motto of a walk on the subject of the end of life, which takes you from the cathedral platform to the Bernese Generation House. We will hear about the customs and rituals of the past, as well as the latest regulations on the end of life - a moving history, a festival of ideas and a cause that brings generations together. The tour ends where some ideas are put into action, and where you will find yourself asking questions you have never asked before. |
D-A-CH session 3: Die Care-Transformation in den DACH-Ländern … auf dem Weg in die Zukunft. Location: Hotel Kreuz - Room "Anker" Chair: Birgit Weihrauch, Caring Community Köln; Verein Endlich Palliativ & Hospiz UK Köln e. V., Germany Chair: Monica Fliedner, Inselspital, Switzerland Language: German
Towards a "Caring Hospice" Palliative and community care network Implementation of the Charter for the Care of the critically Ill and the Dying in Germany: Caring Communities - a joint task of politics, society and the hospice and palliative movement Implementation of advance care planning (ACP) in Switzerland: Strategy of a national working group |
French session Location: Le Cap - Room "Arche/Refuge" Chair: Sibylle Bart, Palliativakademie Bern, Switzerland Chair: Philip J Larkin, CHUV /University of Lausanne, Switzerland Language: French
Methodology to co-produce an intervention to support family caregivers caring for loved ones at their end of life (CEOL-CARE) Rethinking palliative care from a sustainable perspective Challenging taboos surrounding palliative care through theater: a participatory research-creation Deployment of a tool for identifying palliative care patients (ID-PALL) in a university hospital neurology and neurosurgery service Experiencing bereavement: Preliminary results from an umbrella review |
Parallel session 3a: Experiencing bereavement and caregiving Location: Kornhausforum - Plenary hall Chair: Julia Rehsmann, Bern University of Applied Sciences, Switzerland Chair: Ekkapop Sittiwantana, Compassionate Communities Research and Devlopment Institution Foundation Thailand, Thailand Language: English
Findings from Ireland’s first National End of Life Survey; a survey of bereaved relatives on care provided to family members and friends in the last three months of life Grief Kind-bringing grief literacy into people's living rooms and lives Learning by Experience: Does caregiving for loved ones boost personal end-of-life health literacy? Indigenous ‘dying’ gap: An auto-ethnographic reflection of one urban Indigenous family’s experience of caring for their dying mother Understanding the care received at the end of life through a family carer lens: analysis of free-text responses from a national post-bereavement survey in England and Wales. |
| Parallel session 3b: Building death literacy Location: Hotel Bern - Room "Unionssaal 1" Chair: Elizabeth Mary Johnson, The Peaceful Presence Project, United States of America Chair: Marc-Antoine Berthod, University of Applied Sciences and Arts Western Switzerland, Switzerland Language: English
The how and why of home funerals Creating Compassionate Communities after loss: Results from the evaluation of an international grief literacy program “To philosophize means learning to die” – developing death literacy in communities of philosophical and palliative care practice Reciprocal benefits of including end of life doulas in community palliative care: learning from pilot projects in the UK Patient-Centred Hospitals: an innovative training programme for integrating comprehensive and palliative care in healthcare facilities ((QELCA©) Programme) |
Parallel session 3c: Adapting and reorientating health services Location: Hotel Bern - Room "Unionssaal 2" Chair: Samar Aoun, Perron Institute, Australia Chair: Jason Mills, Flinders University, Australia Language: English
Chronic pain among Somali pastoralists in Ethiopia: A mixed-methods study Information meetings stimulate older people to talk about their wishes at the end of life. Ethnic disparities in rates of opioid prescribing for cancer pain and impact on health service use in the UK: Findings from an observational cohort study Using relational ethics to guide equity in public health palliative care Governance and organisation of palliative care in cancer care in Sweden - cancer care leaders’ perspectives |
Workshop 3a: Unpacking causality and impact in public health palliative care initiatives: Exploring research approaches Location: Hotel Kreuz - Room "Hodler" Language: English
Unpacking causality and impact in public health palliative care initiatives: Exploring research approaches |
Workshop 3b: Emerging compassionate communities in Japan and international partnership Location: Hotel Kreuz - Room "Fischer" Language: English
Emerging compassionate communities in Japan and international partnership |
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| 3:30pm - 4:00pm |
Coffee break Location: Kornhauskeller |
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| 4:00pm - 5:30pm |
Plenary 4: Bereavement companionship programs - luxury or societal standard? Location: Kornhausforum - Plenary hall Chair: Saif Mohammed, Institute of Palliative Medicine, India Chair: Libby Sallnow, University College London, United Kingdom Announcement of the PHPCI Research Impact award winner Language: English |
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| 5:30pm - 6:30pm |
Break |
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| 6:30pm - 9:00pm |
Flying dinner - get togehter Location: Kornhauskeller Pre-registration required |
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| E-posters: Overview of all e-posters Please log in to view the e-posters |
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| Set 2: poster abstracts Community engagement in public health palliative care: Results from a comparative ethnographic study of two Compassionate Communities in Canada Reimagining death care for our ageing population Creating learning communities. Development of an international train-the-trainer course for death literacy promotion across three European countries On the Way to Dementia Literacy - Using the Example of the Dementia-Friendly 3rd District (Vienna) Trust in physicians to provide good end-of-life care: before, directly after, and 6 months after an information meeting on end-of-life care. Developing Compassionate Community with ‘community connectors’ Equivalence of construct validity of the Death Literacy Index in Belgium, the Netherlands, and Sweden Quantifying Clinical Load and Role for Generalist Palliative Care during the COVID-19 Pandemic - results from a cohort study on the Predictors of High Opioid and Benzodiazepine use In COVID-19 patients (PHOBIC) Death, Dying and our End-of-Life Wishes: Exploring the Role of Gender and Family Dynamics "It’s more than rainbows in receptions" - Celebrating Life: An innovative community engagement project with minoritized ethnic populations living in areas of socio-economic deprivation in North London: A Service Evaluation Educational approaches toward teaching palliative care to non-palliative care physicians Art and Music therapy in Patients’ LIFe QualitY (AMPLIFY) - an interim analysis from a tertiary based palliative care service Advance care planning and palliative care for an adolescent with acute myeloid leukemia Public Health Issues Raised by legal Assisted Dying (AD). Does legal assisted dying increase (by contagion) or decrease (by prevention) suicide rates? Compassionate Communities for All from Children to the Elderly throughout Japan Promoting a shared approach to improve health in chronic disease: a proposal of a private/public joint program "Palliative Care goes School" - Results from a Project for Upper School Classes in Vorarlberg The use of apps and games to increase the adoption of advance directives in Brazil: An Integrative Review Reflections on co-producing palliative and end of life care research with co-researchers with lived experience of homelessness An integrated approach in Nepal earthquake response: Ensuring cervical cancer screening within the comprehensive sexual and reproductive health services package at Jajarkot and Rukum West districts of Nepal. Methods of teaching medical students about the management and impact of their emotions in future patient care: A scoping review of the literature Determining palliative care need in pediatric patients cared for by home health care Impact of an ‘End-of-Life Education’ Training Course on Knowledge and Attitudes of Nurses and Patient Care Assistants in a Nursing Home Effectiveness of Palliative and Hospice Care Basic Training Manual on non-health and health practitioners’ level of knowledge in the Philippines: A preliminary study A caregiver's coping process with the end-of-life care of a patient with cancer at home: a case study Evaluation of the implementation of digital round table meetings in the palliative outpatient setting Palliative care services among hospitalized children with life-limiting conditions in the U.S. How is peer support expressed within the ‘’Living with Cancer’’ programme? Dealing with desire to die - a topic also for relatives and hospice volunteers Views of the family members about letting the patient know the diagnosis – An experience in a tertiary cancer centre in North East India My Story, Our Journeys: the experiences of patients and families in the last year of life Reflection from college students after a designed interactive speech of advance care planning: A qualitative study with theme analysis by artificial intelligence Assessment of primary care physician knowledge on primary palliative care competencies Developing dementia-friendly communities: A scoping review to understand adolescent knowledge and attitudes towards dementia Validity of the German ICECAP-SCM capability wellbeing measure assessed in specialized palliative care wards in Austria Trends in the place of death for people with cardiovascular diseases in Sweden 2013-2019 Patients’ and family members’ preferences concerning the outcomes of care for the last days of life Evaluating outcomes of ACP interventions for adults living with advanced illness and people close to them: a meta-review Healthy dying training for bachelor’s students in nursing Association of preparedness and palliative care communications with spiritual well-being of family caregivers of patients with vascular dementia The Compassionate Community Evaluation Guide: a tool to increase evaluation capacity A gap in palliative care provision in communities in reginal health 12, Thailand A model of narrative medicine in palliative care: how to use it to create a compassionate city Inclusion of palliative care in Swedish national policy documents for care of severe chronic conditions and cancer A creative approach to tackling complicated grief: the role of music therapy in protecting against risk factors Material legacies: collecting, co-designing, curating and continuing bonds Implementation and Validation of a Mortality Risk Assessment Tool to Enable End-of-Life Care at Home for Older People in Western Australia. How is equity of care measured by specialist palliative care services? Results of a scoping review Demographic profile of end of life family caregivers in the UK: an observational study An exploration of the content validity (relevance, comprehensiveness, and comprehensibility) of the Death Literacy Index in the UK Unsung heroes of COVID-19: Funeral directors’ compassionate care of Indigenous families and communities Can training in spiritual care improve palliative care professionals’ self-care and quality of life?: A pre-post interventional study Pediatric Palliative Care – building bridges between hospital and community care for child and family |
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| 8:30am - 9:00am |
Warm up: with Seniorstars Location: Kornhausforum - Plenary hall "Don Quixote Revisited" - Choreography by Clare Guss-West , Carla Winkelmann & Nina Müller |
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| 9:00am - 10:30am |
Plenary 5: Policy summit of PHPCI 2024: Global compassion! The ‘Bern Declaration’ on community engagement for the end of life Location: Kornhausforum - Plenary hall Chair: Christian Ntizimira, African Center for Research on End of Life Care (ACREOL), Rwanda Chair: Steffen Eychmueller, University Hospital Bern, Switzerland with - Marie Charlotte Bouësseau, former Team Leader at the WHO Integrated Health Services Department - Anne Lévy, Director-General of the Federal Office of Public Health (FOPH), Switzerland - Christian Ntizimira, Executive Director of African Center for Research on End of Life Care (ACREOL), Rwanda Language: English |
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| 10:30am - 11:00am |
Coffee break Location: Kornhauskeller |
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| 11:00am - 12:30pm |
Art and culture experience 4: Qi Gong Class Location: Waisenhausplatz The meeting point: entrance of Kornhauskeller. In case of bad weather the event will take place in the French Church / Französische Kirche. |
Parallel session 4a: Developing sustainable policies Location: Kornhausforum - Plenary hall Chair: Kerrie Noonan, Death Literacy Institute, Australia Chair: Allan Kellehear, Northumbria University, United Kingdom Language: English
Bridging policy gaps in palliative care through political engagement: an action learning case study in Thailand Keeping health care affordable - which health care components drive the cost of end of life care in hospitals? Major discrepancy between peoples´ preferences for place of care and dying and actual place of death in Sweden. Transferable policy solutions for supporting employed end of life family caregivers: Canadian Compassionate Care Benefit “Why should I care?”: an audience reception study of public awareness campaigns on palliative care. |
Parallel session 4b: Volunteering and citizen perspectives Location: Hotel Bern - Room "Unionssaal 1" Chair: Farzana Khan, University of Edinburgh / Fasiuddin Khan Research Foundation, Bangladesh, People's Republic of Chair: Birgit Weihrauch, Caring Community Köln; Verein Endlich Palliativ & Hospiz UK Köln e. V., Germany Language: English
A benefit-cost analysis of an international hospital end-of-life care volunteer service: The iLIVE Volunteer Study A 'buddy' as an additional resource in the care of patients with advanced, incurable illness and their families: Findings from qualitative interviews with patients, bereaved relatives and health and social care professionals. Pilot-testing and evaluation of the ‘Attentive Visitors’ training program to support community volunteers in their palliative care signposting role’ Patient perspectives on conversations with healthcare professionals about life in the context of serious illness and palliative care Information meetings on end-of-life care for Turkish and Moroccan older people. |
Parallel session 4c: Creating public education Location: Hotel Bern - Room "Unionssaal 2" Chair: Claudia Michel, BFH, Switzerland Chair: Saif Mohammed, Institute of Palliative Medicine, India Language: English
Development of public information and education tools on end-of-life and palliative care PalliLEARN: An international collaboration to bring palliative care education to everyone Harnessing the potential of Massive Open Online Courses (MOOC) for global palliative care education - a scoping review Co-developing community end of life choices education: Assessing and responding to death literacy and assisted dying learning needs. LAUT: Last Aid at the workplace as a sensitive approach to death and grief |
| SWISS session 1: Bereavement in the workplace - a public health issue Location: Le Cap - Room "Nicolas Manuel" Chair: Marc-Antoine Berthod, University of Applied Sciences and Arts Western Switzerland, Switzerland Chair: Corina Wirth, Public Health Schweiz, Switzerland Chair: Ursula Zybach, Nationalrätin, Switzerland Language: German and French -> Interpreters and headphones will be provided |
Workshop 4a: Fostering community engagement through Death and Grief Festivals: Insights from four case studies from Scotland, England, Belgium and Canada Location: Hotel Kreuz - Room "Hodler" Language: English
Fostering community engagement through Death and Grief Festivals: Insights from three case studies from Scotland, England, and Belgium Good Grief, Nova Scotia! A workshop about building a successful grief festival. |
Workshop 4b: Successful public messaging about early palliative care: The 7 keys of the Waiting Room Revolution Location: Hotel Kreuz - Room "Fischer" Language: English
Successful public messaging about early palliative care: The 7 keys of the Waiting Room Revolution |
Workshop 4c: The art of invitation: convening community groups to promote participatory action learning Location: Le Cap - Room "Arche/Refuge" Language: English
The art of invitation: convening community groups to promote participatory action learning |
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| 12:30pm - 2:00pm |
'Lunch break incl. poster walk Location: Kornhauskeller The poster walk starts at 1:15 PM at the entrance to the poster exhibition
Chair: Kelli Stajduhar, Canada Chair: Carol Tishelman, Sweden |
EAPC: Reference group meeting Location: Kornhausforum - Plenary hall This meeting is open to all participants |
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| 2:00pm - 3:30pm |
Art and culture experience 5: The Portrait Memoir of Love Location: Le Cap - Room "Arche/Refuge" Chair: Ekkapop Sittiwantana, Compassionate Communities Research and Devlopment Institution Foundation Thailand, Thailand |
Parallel session 5a: Measuring death literacy Location: Kornhausforum - Plenary hall Chair: Corina Wirth, Public Health Schweiz, Switzerland Chair: Roman Rolke, Uniklinik RWTH Aachen, Germany Language: English
Death Literacy Index: the development of the short form DLI-9 Understanding death literacy in Birmingham city Death literacy as a basis for dealing with death and dying in German-speaking regions Translating and adapting the Death Literacy Index in Belgium, the Netherlands and Sweden: characteristics and challenges |
Parallel session 5b: Transforming professional education Location: Hotel Bern - Room "Unionssaal 1" Chair: Monica Fliedner, Inselspital, Switzerland Chair: Max Kleijberg, Karolinska Institutet, Sweden Language: English
Building bridges with rapport: experiences during telehealth in palliative care Strengthening palliative care data Integration in national Health Management Information System (HMIS): The mobile Health surveillance story of data driven by compassion in Uganda Increasing generalist provider competency in early palliative care: Results from the CAPACITI education randomized controlled trial Continuing legal education on advance care planning: multi-sectoral partners co-develop a curriculum to increase clinical understanding, equip champions and evaluate best practices How can I choose? Personal end-of-life health literacy; a key factor for advance care planning. |
Parallel session 5c: Exploring research methodology Location: Hotel Bern - Room "Unionssaal 2" Chair: Kristina Alexis Smith, University of Victoria, Canada Chair: Raymond Voltz, University Hospital Köln, Germany Language: English
Adapting public health palliative care interventions to new settings using ADAPT guidance: the example of NavCare-EU Community researchers in end-of-life care research addressing intersectional inequalities: A rapid realist review and evaluation Use of implementation science to tailor evidence-based BEreavement SupporT to families in Swiss specialized palliative care: The BEST for Family Project Reconstructing the presumed will of people who no longer have medical decision-making capacity in order to promote their autonomy in future treatment decisions: a discursive and conversation analytic study of naturalistic data. Bridging the gap: Strategies to engage under researched and underserved populations in palliative care research. |
| SWISS session 2: Wege zur Compassionate Community Location: Le Cap - Room "Nicolas Manuel" Chair: Claudia Michel, BFH, Switzerland Chair: Renate Gurtner Vontobel, palliative.ch, Switzerland Language: German and French -> Interpreters and headphones will be provided |
Workshop 5a: Building on evidence, experiences, and mutual reflections to develop Compassionate Schools: a practical workshop Location: Hotel Kreuz - Room "Hodler" Language: English
Building on evidence, experiences, and mutual reflections to develop Compassionate Schools: a practical workshop |
Workshop 5b: Africa in the spotlight: empowerment of people and communities Location: Hotel Kreuz - Room "Fischer" Language: English
Africa in the spotlight: empowerment of people and communities. |
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| 3:30pm - 4:00pm |
Coffee break Location: Kornhauskeller |
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| 4:00pm - 10:00pm |
City festival endlich.menschlich. Free festival for all participants and the people from Bern and around. Opening speech at 4pm on the stage at Zeughausgasse. |
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| E-posters: Overview of all e-posters Please log in to view the e-posters |
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| Set 2: poster abstracts |
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| 9:00am - 10:30am |
Art and culture experience 6: Exhibition “What comforts you?” and authors' talk on the new “Hidden object book on saying goodbye“ Location: Kornhausbibliothek / Kornhaus library (3rd floor of Kornhaus) The interactive exhibition invites us to reflect on our transience and what comforts us in moments of grief and despair. We will also gain an insight into the conception and stories of the new hidden object book by palliative care physician and family grief counselor Sophia Bartenstein and book illustrator Andrea Peter. |
Parallel session 6a: Fostering compassionate communities Location: Kornhausforum - Plenary hall Chair: Esther Nafula Wekesa, Kenyatta National Hospital, Kenya Chair: Clément Meier, University of Lausanne, Switzerland Language: English
Places of solace: a starting point for a Compassionate Community? Relationships while living with life limiting illness: What can Compassionate Communities offer? InVita! Pathways and actions for the creation of Caring Communities: discover, asses, focus, and commit Willingness to support neighbours practically or emotionally: A cross-sectional survey among the general public Facilitators and barriers to developing Compassionate Neighbourhoods |
Parallel session 6b: Engaging with children and young adults Location: Hotel Bern - Room "Unionssaal 1" Chair: Sibylle Felber, Local Organizing Committee | University Centre for Palliative Care Bern, Switzerland Chair: Guy Peryer, University of East Anglia, United Kingdom Language: English
Drawings about end-of-life issues: Analysis of pictures by children in Sweden during the 1st Covid-19 wave Lessons of Life for School Children: What We can do to Increase Compassionate Individuals and Communities Normalizing death, grief, loss and care in a University of Applied Sciences community Using narrative data to engage young adults in conversations about dying and death Evaluation of the teacher training phase of the School Bereavement Programme in Northern Ireland |
Parallel session 6c: Understanding and evaluating compassionate cities Location: Hotel Bern - Room "Unionssaal 2" Chair: Sally Paul, University of Strathlcyde, United Kingdom Chair: Libby Sallnow, University College London, United Kingdom Language: English
Cross-cultural perspectives on Belgian and Canadian compassionate communities: comparing results from two cousins initiatives Feasibility of creating a general Compassionate Cities evaluation model: a tale of three cities Measuring the effectiveness of a Compassionate Communities initiative to raise public awareness of palliative care and advance care planning: an evaluation framework Healthy End of Life Project (HELP) Ottawa: Circling back and moving forward Caring for the Sick and Dying in the Philippines: Is it Traditional and Modern Today? |
| SWISS session 3: Self-reflection: how to stay healthy as a compassionate carer Location: Hotel Kreuz - Room "Anker" Chair: Philip J Larkin, CHUV /University of Lausanne, Switzerland Chair: Julia Rehsmann, Bern University of Applied Sciences, Switzerland Language: German and French -> It is translated in both languages |
Workshop 6a: Towards equity-oriented palliative care: A pan-Canadian workshop on improvements in palliative care for individuals experiencing homelessness or vulnerable housing Location: Hotel Kreuz - Room "Hodler" Language: English
Towards equity-oriented palliative care: A pan-Canadian workshop on improvements in palliative care for individuals experiencing homelessness or vulnerable housing |
Workshop 6b: Disrupting Death; Engaging in community conversations about Medical Assistance in Dying (MAiD) Location: Hotel Kreuz - Room "Fischer" Language: English
Disrupting Death; Engaging in community conversations about Medical Assistance in Dying (MAiD) |
Workshop 6c: Compassionate Workplaces in Europe: sharing experiences and resources Location: Le Cap - Room "Arche/Refuge" Language: English
Compassionate Workplaces in Europe: sharing experiences and resources |
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| 10:30am - 11:00am |
Coffee break Location: Kornhauskeller |
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| 11:00am - 12:30pm |
Plenary 6: Compassionate cities international Location: Kornhausforum - Plenary hall Chair: Vilma Adriana Tripodoro, Institute Pallium Latinoamerica/ATLANTES Global Observatory of Palliative Care WHO CC, Argentine Republic Chair: Allan Kellehear, Northumbria University, United Kingdom Chair: Steffen Eychmueller, University Hospital Bern, Switzerland Announcement of the PHPCI Early Career award winner Language: English |
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| 12:30pm - 1:00pm |
Conference wrap up Location: Kornhausforum - Plenary hall Language: English |
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| 1:00pm - 2:00pm |
Take away lunch bags Location: Kornhauskeller |
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| 2:00pm - 3:30pm |
Art and culture experience 7: Reflection path From the beginning and the end. Take some time for yourself and immerse yourself in the beautiful, peaceful atmosphere at the Bremgarten cemetery. Take a walk along the path of reflection with a guided tour by Barbara Shankar. You willl encounter philosophical, poetic, comforting and encouraging texts and impulses for dealing with the subject of life and death. Bremgartenfriedhof (cemetery) can be reached by public transport from the main train station (up stairs near the parking). Take bus (Post Auto) #100 or 101, destination Bremgartenfriedhof. Parking for private cars is limited. Meeting Point: main office |
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| 2:00pm - 5:00pm |
The Digital Legacy Conference 2024 Location: Le Cap - Room "Nicolas Manuel" The Digital Legacy Conference 2024 will take place as part of PHPCI. It is an annual conference that explores and celebrates the positive impact technology can have within the end of life and bereavement. Attendees will learn about emerging best practices in areas relating to digital assets planning and digital legacy safeguarding. It is free to attend for all PHPCI badgeholders. Agenda —————————————————————————————————————— 13:50 Welcome message from the Digital Legacy Association This year's MC's are James Norris (The Digital Legacy Association & MyWishes) and Cale Bole (a digital thanatosensitivity (the design of products that anticipate the eventual death of the user) researcher and Masters student —————————————————————————————————————— 14:00 Understanding the use of digital technologies in public health palliative care • Dr Jason Mills is an Associate Professor at the Flinders University Research Centre for Palliative Care, Death and Dying. He holds fellowships with the Royal Society for Public Health, Higher Education Academy, and is Editor-in-Chief for the international journal Progress in Palliative Care • Professor Shyla Mills is the CEO at Palliative Care South Australia (PCSA) —————————————————————————————————————— 14:25 Public Health approaches to Digital Assets, Digital Legacy and Digital Bereavement • James Norris, Founder of The Digital Legacy Association & MyWishes. Digital Research Fellow at Harlington Hospice & Design Research Fellow at the Velindre Cancer Centre. —————————————————————————————————————— 14:50 Meta and Facebook’s approaches to memorialisation • Emilar Gandhi, Head of Stakeholder Engagement for Policy Development within Meta’s Trust and Safety Policy —————————————————————————————————————— 15:15 Opportunities and Risks of the Digital Afterlife: results from a comprehensive Swiss Technology Assessment Study • Dr. Jean-Daniel Strub: Dr. of theology; independent ethics researcher and consultant; clinical ethicist • Prof. Dr. Ralf J. Jox: Professor of biomedical ethics, neurologist and palliative care specialist at the University of Lausanne (Chair of Palliative Geriatric Care/University Hospital Lausanne) • Prof. Dr. Francesca Bosisio: professor of management and public health; specialist in advance care planning and advance directives —————————————————————————————————————— 15:40 Navigating Digital Remains: Ethical Challenges and Cultural Perspectives from Japan • Professor Akiko Orita, Japanese scholar based in Japan, holds a Ph.D. from Keio University and has served as faculty at Chuo University, Keio University, and Kennesaw State University. She is currently a Professor at Kanto Gakuin University. Her research focuses on privacy, digital identity, and the ethical handling of data after death —————————————————————————————————————— 16:05 Importance of Digital Inheritance During Natural Disasters • İlayda Yılmaz Murat, PhD Candidate at Bilkent University Graduate School of Economics and Social Sciences. She completed her LL.M. degree with the Master’s Thesis titled “Digital Inheritance”. She studies in the field of Civil Law. —————————————————————————————————————— 16:30 Governance of the Digital Afterlife • Khadiza Laskor, PhD Student at the University of Bristol’s Cyber Security Centre for Doctoral Training Programme —————————————————————————————————————— 16:55 Closing remarks —————————————————————————————————————— 17:00 close 17:00 onwards (Meet-up, Food and Drink) |
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