Conference Agenda

Overview and details of the sessions of this conference. Please select a date or location to show only sessions at that day or location. Please select a single session for detailed view (with abstracts and downloads if available).

 
 
Session Overview
Date: Thursday, 24/Oct/2024
  E-posters: Overview of all e-posters
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  Set 2: poster abstracts
 

Community engagement in public health palliative care: Results from a comparative ethnographic study of two Compassionate Communities in Canada

Émilie Lessard, Isabelle Marcoux, Serge Daneault, Lise Jean, Dale Weil, Cynthia Lapointe, Ghislaine Rouly, Antoine Boivin



Reimagining death care for our ageing population

Rebecca Jane Lyons



Creating learning communities. Development of an international train-the-trainer course for death literacy promotion across three European countries

Patrick Schuchter, Marianne Buchegger, Johannes Jurka, Elena Gaicu, Ina Dreglea, Maria dos Anjos Dixe, Ana Querido, Carlos Laranjeira



On the Way to Dementia Literacy - Using the Example of the Dementia-Friendly 3rd District (Vienna)

Marianne Buchegger



Trust in physicians to provide good end-of-life care: before, directly after, and 6 months after an information meeting on end-of-life care.

Tessa D. Bergman, Stefanie van der Hoorn, Annicka G.M. van der Plas, Bregje D. Onwuteaka-Philipsen, H. Roeline W. Pasman



Developing Compassionate Community with ‘community connectors’

Kaori Yoshida



Equivalence of construct validity of the Death Literacy Index in Belgium, the Netherlands, and Sweden

Therese Johansson, Steven Vanderstichelen, Aleksandra Bujazc, Leo Kowalski, Carol Tishelman, Corine A. Nierop-van Baalen, Marieke Groot, Åsa Olsson, Lars E. Eriksson, Ida Goliath, Joachim Cohen



Quantifying Clinical Load and Role for Generalist Palliative Care during the COVID-19 Pandemic - results from a cohort study on the Predictors of High Opioid and Benzodiazepine use In COVID-19 patients (PHOBIC)

Mahrley Tanagon Provido, Sheryl Ng, Wen Yang Goh



Death, Dying and our End-of-Life Wishes: Exploring the Role of Gender and Family Dynamics

Lexi Bryony Sears



"It’s more than rainbows in receptions" -

Jed Jerwood, Gemma Allen



Celebrating Life: An innovative community engagement project with minoritized ethnic populations living in areas of socio-economic deprivation in North London: A Service Evaluation

Rekha Vijayshankar



Educational approaches toward teaching palliative care to non-palliative care physicians

Maria Fidelis Coronel Manalo. MD, Gwen G. Garrido Bagayo, Rosemarylin L. Or



Art and Music therapy in Patients’ LIFe QualitY (AMPLIFY) - an interim analysis from a tertiary based palliative care service

Lynn Wiryasaputra, Lee-Hung Tey, Zhi-Jun Low, Su-Qi Lam, Han-Yee Neo, Allyn Yin-Mei Hum



Advance care planning and palliative care for an adolescent with acute myeloid leukemia

Alma Lipnica Pabilane, Martha Jane Pauline Umali



Public Health Issues Raised by legal Assisted Dying (AD). Does legal assisted dying increase (by contagion) or decrease (by prevention) suicide rates?

Jan Bernheim, Neil Francis, Frank Schweitser, Joachim Cohen, Kenneth Chambaere, Dries Verlet, Peter Theuns



Compassionate Communities for All from Children to the Elderly throughout Japan

Keiko Chida, Taketoshi Ozawa



Promoting a shared approach to improve health in chronic disease: a proposal of a private/public joint program

Matteo Moroni, Antonio Corvetta, Massimo Bandini



"Palliative Care goes School" - Results from a Project for Upper School Classes in Vorarlberg

Andrea Moosbrugger, Otto Gehmacher, Fabian Rebitzer



The use of apps and games to increase the adoption of advance directives in Brazil: An Integrative Review

Camila Vitória Rosa de Souza, Julia de Souza Frassato, Marcio José de Almeida



Reflections on co-producing palliative and end of life care research with co-researchers with lived experience of homelessness

Jodie Adele Crooks, Mandy Pattinson, Kate Flemming, Caroline Shulman, Briony Hudson



An integrated approach in Nepal earthquake response: Ensuring cervical cancer screening within the comprehensive sexual and reproductive health services package at Jajarkot and Rukum West districts of Nepal.

Om Maharjan, Rajrattan Pandhari Lokhande



Methods of teaching medical students about the management and impact of their emotions in future patient care: A scoping review of the literature

Anna Adelheid Lange, Raphaël Bonvin, Sissel Guttormsen Schär, Sofia C. Zambrano



Determining palliative care need in pediatric patients cared for by home health care

Maya Zumstein-Shaha, Brigitte Hofer Fritzsche, Eva Maria Tinner Oehler



Impact of an ‘End-of-Life Education’ Training Course on Knowledge and Attitudes of Nurses and Patient Care Assistants in a Nursing Home

Dilys Inqi Lee



Effectiveness of Palliative and Hospice Care Basic Training Manual on non-health and health practitioners’ level of knowledge in the Philippines: A preliminary study

Edmar San Jose Elcarte, Agnes Bausa-Claudio, Lester Sam Geroy, Teddy Dizon, Ana Kristine Bermudez, Clarito Cairo



A caregiver's coping process with the end-of-life care of a patient with cancer at home: a case study

Aya Yoshida, Kanami Takasuga, Yoriko Hara, Mika Yasue, Hiromi Matumoto, Yuka Suzaki



Evaluation of the implementation of digital round table meetings in the palliative outpatient setting

Maud Maessen, Barbara Hänni- Hubler, Georgette Jeneltten, Steffen Eychmüller



Palliative care services among hospitalized children with life-limiting conditions in the U.S.

Jay Shen, Zahra Mojtahed, Pearl Kim



How is peer support expressed within the ‘’Living with Cancer’’ programme?

Busra Sattari - Kaysi, Erica Witkamp, Judith Rietjens



Dealing with desire to die - a topic also for relatives and hospice volunteers

Kerstin Kremeike, Kathleen Boström, Raymond Voltz



Views of the family members about letting the patient know the diagnosis – An experience in a tertiary cancer centre in North East India

Kabindra Bhagabati, Samujjhal Bharadwaj, Tarun Sonowal, Uttam Changmai



My Story, Our Journeys: the experiences of patients and families in the last year of life

Jaklin Ardath Eliott, Anna Chur-Hansen, Clemence Due, Kate Gunn, Gillian Harvey, Ali Lakhani, Karen Nobes, Georgia Rowley, Shannen van der Kruk



Reflection from college students after a designed interactive speech of advance care planning: A qualitative study with theme analysis by artificial intelligence

Shu-Yi Wang, Wei-Min Chu



Assessment of primary care physician knowledge on primary palliative care competencies

Natasha Seebaran, Amir Radfar



Developing dementia-friendly communities: A scoping review to understand adolescent knowledge and attitudes towards dementia

Niamh McCarhy, Svea Nagel, Gabriel Caughan, Emma Berry, Gillian Carter, Lisa Graham -Wisener



Validity of the German ICECAP-SCM capability wellbeing measure assessed in specialized palliative care wards in Austria

Elisabeth Saly, Judit Simon, Karin Brenner, Bert Engelhardt, Gudrun Kreye, Rudolf Likar, Eva Katharina Masel, Veronika Mosich, Mario Molnar, Andrea Passini, Claudia Fischer



Trends in the place of death for people with cardiovascular diseases in Sweden 2013-2019

Stina Nyblom, Joakim Öhlén, Cecilia Larsdotter, Anneli Ozanne, Carl Johan Fürst Fürst, Ragnhild Hedman



Patients’ and family members’ preferences concerning the outcomes of care for the last days of life

Sofia Carolina Zambrano, Valentina Gonzalez-Jaramillo, Martina Egloff, Cornelia Staehli, Steffen Eychmueller



Evaluating outcomes of ACP interventions for adults living with advanced illness and people close to them: a meta-review

Jodie Adele Crooks, Noura Rizk, Briony Hudson, Gina Hopwood, Charlotte Simpson Greene, Kathy Seddon, Owen Smith



Healthy dying training for bachelor’s students in nursing

Manon Duay, Josepha Girard



Association of preparedness and palliative care communications with spiritual well-being of family caregivers of patients with vascular dementia

Ubolrat Piamjariyakul, Saima Shafique, Nathaniel Palmer, Carol Smith



The Compassionate Community Evaluation Guide: a tool to increase evaluation capacity

Bonnie Thompkins, Eman Hassan, Émilie Lessard



A gap in palliative care provision in communities in reginal health 12, Thailand

Kittikorn Nilmanat, Samonnun Thasaneesuwan, Shutiwan Purinthrapibal, Jintana Damkliang, Kallaya Sae-Chit, Pruksaporn Thammachote



A model of narrative medicine in palliative care: how to use it to create a compassionate city

Danila Zuffetti



Inclusion of palliative care in Swedish national policy documents for care of severe chronic conditions and cancer

Anna O'Sullivan, Linnéa Carling, Cecilia Larsdotter, Stina Nyblom, Anneli Ozanne, Ragnhild Hedman, Carl-Johan Fürst, Joakim Öhlén



A creative approach to tackling complicated grief: the role of music therapy in protecting against risk factors

Lisa Graham -Wisener, Katie Gillespie, Audrey Roulston, Noah Potvin, Cara Ghiglieri, Ishan Gadde, Margaret Anderson, Jenny Kirkwood, Daniel Thomas, Lorna Roche, Marcella O'Sullivan, Angela McCullagh, Tracey McConnell



Material legacies: collecting, co-designing, curating and continuing bonds

Stacey Pitsillides



Implementation and Validation of a Mortality Risk Assessment Tool to Enable End-of-Life Care at Home for Older People in Western Australia.

Mayumi Omaya Nayanathara Perera Kumarage, Maria Davison, Michelle Dunne, Elizabeth Mortley, Patricia Cain, Melanie Baker, Linda Coventry, Davina Porock



How is equity of care measured by specialist palliative care services? Results of a scoping review

Emily Schorr, Patricia Biondo, Nicholas Cao, Maya Eboigbodin, Hannah Harsanyi, Aashima Rattan, Altay Baykan, Zahra Premji, Jessica Simon



Demographic profile of end of life family caregivers in the UK: an observational study

Clare Gardiner, Arthur Juet, Edward Webb, Juliet Stone



An exploration of the content validity (relevance, comprehensiveness, and comprehensibility) of the Death Literacy Index in the UK

Caitlin Nelson, Brittany McAllistar, Laura Smyth, Stephanie Crawford, Lisa Graham -Wisener



Unsung heroes of COVID-19: Funeral directors’ compassionate care of Indigenous families and communities

Tess Huia Moeke-Maxwell, Linda Waimaria Nikora, Nette Marie Scurr



Can training in spiritual care improve palliative care professionals’ self-care and quality of life?: A pre-post interventional study

María Nabal-Vicuña, Noemí Sanso, Sara Martinez-Gregorio, Carlos Laranjeira, Ana Querido, Monica Dones, Marcela Specos, Enric Benito



Pediatric Palliative Care – building bridges between hospital and community care for child and family

Simone Keller, Brigitte Griffiths

8:30am
-
9:00am
Warm up: with Seniorstars
Location: Kornhausforum - Plenary hall
"Don Quixote Revisited" - Choreography by Clare Guss-West , Carla Winkelmann & Nina Müller
9:00am
-
10:30am
Plenary 5: Policy summit of PHPCI 2024: Global compassion! The ‘Bern Declaration’ on community engagement for the end of life
Location: Kornhausforum - Plenary hall
Chair: Christian Ntizimira, African Center for Research on End of Life Care (ACREOL), Rwanda
Chair: Steffen Eychmueller, University Hospital Bern, Switzerland
with - Marie Charlotte Bouësseau, former Team Leader at the WHO Integrated Health Services Department - Anne Lévy, Director-General of the Federal Office of Public Health (FOPH), Switzerland - Christian Ntizimira, Executive Director of African Center for Research on End of Life Care (ACREOL), Rwanda Language: English
10:30am
-
11:00am
Coffee break
Location: Kornhauskeller
11:00am
-
12:30pm
Art and culture experience 4: Qi Gong Class
Location: Waisenhausplatz
The meeting point: entrance of Kornhauskeller. In case of bad weather the event will take place in the French Church / Französische Kirche.
Parallel session 4a: Developing sustainable policies
Location: Kornhausforum - Plenary hall
Chair: Kerrie Noonan, Death Literacy Institute, Australia
Chair: Allan Kellehear, Northumbria University, United Kingdom
Language: English
 

Bridging policy gaps in palliative care through political engagement: an action learning case study in Thailand

Ekkapop Sittiwantana



Keeping health care affordable - which health care components drive the cost of end of life care in hospitals?

Monika Hagemann, Steffen Eychmüller, Maud Maessen



Major discrepancy between peoples´ preferences for place of care and dying and actual place of death in Sweden.

Cecilia Larsdotter, Stina Nyblom, Hanna Gyllensten, Carl-Johan Furst, Anneli Ozanne, Ragnhild Hedman, Stefan Nilsson, Joakim Öhlén



Transferable policy solutions for supporting employed end of life family caregivers: Canadian Compassionate Care Benefit

Clare Gardiner, Kelli Stajduhar



“Why should I care?”: an audience reception study of public awareness campaigns on palliative care.

Marjolein Matthys, Kenneth Chambaere, Benedicte Deforche, Luc Deliens, Joachim Cohen, Leen Van Brussel, Kim Beernaert, Naomi Dhollander

Parallel session 4b: Volunteering and citizen perspectives
Location: Hotel Bern - Room "Unionssaal 1"
Chair: Farzana Khan, University of Edinburgh / Fasiuddin Khan Research Foundation, Bangladesh, People's Republic of
Chair: Birgit Weihrauch, Caring Community Köln; Verein Endlich Palliativ & Hospiz UK Köln e. V., Germany
Language: English
 

A benefit-cost analysis of an international hospital end-of-life care volunteer service: The iLIVE Volunteer Study

Claudia Fischer, Michael Berger, Misa Bakan, Ellershaw John, Haugen Dagny, Goossensen Anne, Mason Stephen, McGlinchey Tamsin, Ruiz-Torreras Inmaculada, Smeding Ruthmarijke, Van der Heide Agnes, Simon Judit



A 'buddy' as an additional resource in the care of patients with advanced, incurable illness and their families: Findings from qualitative interviews with patients, bereaved relatives and health and social care professionals.

Alina Kasdorf, Raymond Voltz, Julia Strupp



Pilot-testing and evaluation of the ‘Attentive Visitors’ training program to support community volunteers in their palliative care signposting role’

Sabet Van Steenbergen, Steven Vanderstichelen, Else Gien Statema, Luc Deliens, Sarah Dury, Kenneth Chambaere



Patient perspectives on conversations with healthcare professionals about life in the context of serious illness and palliative care

Malin Bengtsson, Stina Nyblom, Ramona Schenell, Lena von Bahr, Margareta Haag, Joakim Öhlén



Information meetings on end-of-life care for Turkish and Moroccan older people.

Tessa D. Bergman, Annicka G.M. van der Plas, Bregje D. Onwuteaka-Philipsen, H. Roeline W. Pasman

Parallel session 4c: Creating public education
Location: Hotel Bern - Room "Unionssaal 2"
Chair: Claudia Michel, BFH, Switzerland
Chair: Saif Mohammed, Institute of Palliative Medicine, India
Language: English
 

Development of public information and education tools on end-of-life and palliative care

Julien Carretier, Anna Altea, Thomas Gonçalves, Sarah Dauchy, Giovanna Marsico



PalliLEARN: An international collaboration to bring palliative care education to everyone

Mary-Ann Shantz, Shyla Mills, Jason Mills, Patricia Biondo, Sheila Killoran, Maril Murray, Louise Kashuba



Harnessing the potential of Massive Open Online Courses (MOOC) for global palliative care education - a scoping review

Danni Collingridge Moore, Natalie Cotterell, Yakubu Salifu, Nancy Preston



Co-developing community end of life choices education: Assessing and responding to death literacy and assisted dying learning needs.

Michael Chapman, Kain Ping Tan, Nathan Emmerich, Jennifer Philip, Jennifer Tieman, Brett Scholz, Aileen Collier, Linda Powell, Imogen Mitchell, Kerrie Noonan



LAUT: Last Aid at the workplace as a sensitive approach to death and grief

Georg Bollig, Karin Ohler, Alina Kasdorf, Golrokh Esmaili, Helena Kukla, Raymond Voltz, Julia Strupp

SWISS session 1: Bereavement in the workplace - a public health issue
Location: Le Cap - Room "Nicolas Manuel"
Chair: Marc-Antoine Berthod, University of Applied Sciences and Arts Western Switzerland, Switzerland
Chair: Corina Wirth, Public Health Schweiz, Switzerland
Chair: Ursula Zybach, Nationalrätin, Switzerland
Language: German and French -> Interpreters and headphones will be provided
Workshop 4a: Fostering community engagement through Death and Grief Festivals: Insights from four case studies from Scotland, England, Belgium and Canada
Location: Hotel Kreuz - Room "Hodler"
Language: English
 

Fostering community engagement through Death and Grief Festivals: Insights from three case studies from Scotland, England, and Belgium

Hanne Bakelants, Mark Hazelwood, Rebecca Patterson, Lucy Selman



Good Grief, Nova Scotia! A workshop about building a successful grief festival.

Mary Ellen Macdonald, Susan Cadell

Workshop 4b: Successful public messaging about early palliative care: The 7 keys of the Waiting Room Revolution
Location: Hotel Kreuz - Room "Fischer"
Language: English
 

Successful public messaging about early palliative care: The 7 keys of the Waiting Room Revolution

Hsien Seow, Samantha Winemaker

Workshop 4c: The art of invitation: convening community groups to promote participatory action learning
Location: Le Cap - Room "Arche/Refuge"
Language: English
 

The art of invitation: convening community groups to promote participatory action learning

Guy Peryer

12:30pm
-
2:00pm
'Lunch break incl. poster walk
Location: Kornhauskeller
The poster walk starts at 1:15 PM at the entrance to the poster exhibition Chair: Kelli Stajduhar, Canada Chair: Carol Tishelman, Sweden
EAPC: Reference group meeting
Location: Kornhausforum - Plenary hall
This meeting is open to all participants
2:00pm
-
3:30pm
Art and culture experience 5: The Portrait Memoir of Love
Location: Le Cap - Room "Arche/Refuge"
Chair: Ekkapop Sittiwantana, Compassionate Communities Research and Devlopment Institution Foundation Thailand, Thailand
Parallel session 5a: Measuring death literacy
Location: Kornhausforum - Plenary hall
Chair: Corina Wirth, Public Health Schweiz, Switzerland
Chair: Roman Rolke, Uniklinik RWTH Aachen, Germany
Language: English
 

Death Literacy Index: the development of the short form DLI-9

Kerrie Noonan, Andrea Grindrod, Sumina Shrestha, Sora Lee, Rosemary Leonard



Understanding death literacy in Birmingham city

Emma Hodges



Death literacy as a basis for dealing with death and dying in German-speaking regions

Kerstin Kremeike, Sophie Meesters, Raymond Voltz



Translating and adapting the Death Literacy Index in Belgium, the Netherlands and Sweden: characteristics and challenges

Therese Johansson, Steven Vanderstichelen, Carol Tishelman, Åsa Olsson, Corine A. Nierop-van Baalen, Marieke Groot, Lars E. Eriksson, Ida Goliath, Joachim Cohen

Parallel session 5b: Transforming professional education
Location: Hotel Bern - Room "Unionssaal 1"
Chair: Monica Fliedner, Inselspital, Switzerland
Chair: Max Kleijberg, Karolinska Institutet, Sweden
Language: English
 

Building bridges with rapport: experiences during telehealth in palliative care

Wendy English, Jackie Robinson, Merryn Gott



Strengthening palliative care data Integration in national Health Management Information System (HMIS): The mobile Health surveillance story of data driven by compassion in Uganda

Cynthia Kabagambe, Lisa Christine Irumba



Increasing generalist provider competency in early palliative care: Results from the CAPACITI education randomized controlled trial

Hsien Seow, Samantha Winemaker, Marshall Denise



Continuing legal education on advance care planning: multi-sectoral partners co-develop a curriculum to increase clinical understanding, equip champions and evaluate best practices

Maureen Douglas, Charlie Chen, Nola Ries, Sara O'Dea, Melanie Blackwell, Shelly Chamaschuk, Shelley Waite, Eleanor Stewart, Tyler Hamil, Ellen Mi, Patricia Biondo, Maril Murray, Louise Kashuba



How can I choose? Personal end-of-life health literacy; a key factor for advance care planning.

Clément Meier, Sarah Vilpert, Maud Wieczorek, Carmen Borrat-Besson, Ralf J. Jox, Jürgen Maurer

Parallel session 5c: Exploring research methodology
Location: Hotel Bern - Room "Unionssaal 2"
Chair: Kristina Alexis Smith, University of Victoria, Canada
Chair: Raymond Voltz, University Hospital Köln, Germany
Language: English
 

Adapting public health palliative care interventions to new settings using ADAPT guidance: the example of NavCare-EU

Fien Van Campe, Kenneth Chambaere, Lara Pivodic, Joni Gilissen, Barbara Pesut, Wendy Duggleby, Tinne Smets, Katarzyna Szczerbińska, Barbara Gomes, Andrew Davies, Davide Ferraris, Bregje Onwuteaka-Philipsen, Lieve Van den Block



Community researchers in end-of-life care research addressing intersectional inequalities: A rapid realist review and evaluation

Mariam Fargin, Andrew Booth, Samina Begum, Inayah Sher, Shabina Bashir, Mark Clowes, Jamilla Hussain



Use of implementation science to tailor evidence-based BEreavement SupporT to families in Swiss specialized palliative care: The BEST for Family Project

Rahel Naef, Torsten Schwalbach, Marco Riguzzi, Noëmi Lehmann, Mirjam Buschor-Bichsel, Patrizia Künzler-Heule, David Blum



Reconstructing the presumed will of people who no longer have medical decision-making capacity in order to promote their autonomy in future treatment decisions: a discursive and conversation analytic study of naturalistic data.

Laura Jones, Ralf J Jox, Eve Rubli Truchard, Anca-Cristina Sterie



Bridging the gap: Strategies to engage under researched and underserved populations in palliative care research.

Karen Faye Nobes, Gillian Harvey, Jaklin Eliot

SWISS session 2: Wege zur Compassionate Community
Location: Le Cap - Room "Nicolas Manuel"
Chair: Claudia Michel, BFH, Switzerland
Chair: Renate Gurtner Vontobel, palliative.ch, Switzerland
Language: German and French -> Interpreters and headphones will be provided
Workshop 5a: Building on evidence, experiences, and mutual reflections to develop Compassionate Schools: a practical workshop
Location: Hotel Kreuz - Room "Hodler"
Language: English
 

Building on evidence, experiences, and mutual reflections to develop Compassionate Schools: a practical workshop

Sally Paul, Bert Quintiens, Joachim Cohen, Sarah Dury, Kate Owen

Workshop 5b: Africa in the spotlight: empowerment of people and communities
Location: Hotel Kreuz - Room "Fischer"
Language: English
 

Africa in the spotlight: empowerment of people and communities.

Fernanda Vieira Bastos, Vilma Tripodoro, Christian Ntizimira

 
3:30pm
-
4:00pm
Coffee break
Location: Kornhauskeller
4:00pm
-
10:00pm
City festival endlich.menschlich.
Free festival for all participants and the people from Bern and around. Opening speech at 4pm on the stage at Zeughausgasse.

 
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