Papers 7: Collecting Data about Vulnerable Populations
Documenting the Undocumented: Privacy and Security Guidelines for Humanitarian Work with Irregular Migrants
1University of Washington; 2University of Kentucky
Humanitarian organizations frequently do not fully address the implications of collecting, storing, and using data about vulnerable populations. We propose a conceptual framework for Humanitarian Information Activities (HIA), especially in the context of undocumented migration. We examine this framework in the light of both a survey of the literature and a pilot study that examines HIA activities in three distinct contexts: 1) higher education institutions that provide support to undocumented students, 2) non-profit organizations that provide legal support to undocumented immigrants, and 3) humanitarian organizations assisting undocumented migrants near the US-Mexico border. We discuss both technological and human risks in HIA, the limitations of privacy self-management, and the need for clear privacy-related guidelines for HIA. We conclude suggesting guidelines to strengthen the privacy protection offered to vulnerable populations by humanitarian organizations in the context of irregular migration.
Applying photovoice to the study of Asian immigrants’ information needs
1Universitas Gadjah Mada, Indonesia; 2University of South Australia; 3City University of Hong Kong
Immigrants in their new country may have diverse and complex information needs. Appropriate methods are part of scientific discourse on how to effectively engage with immigrants to reflect their information needs and life experiences. This paper discusses the application of the photovoice method to study Asian im-migrants’ information needs as they settled in South Australia. As a participatory approach, photovoice allowed immigrants to take photos to actively record their own information needs and concerns. We reflected how photovoice can contrib-ute to a comprehensive understanding of immigrants’ information needs by overcoming language barriers and expressing personal feelings and emotions. Photovoice is considered to be a useful method for studying vulnerable or un-derrepresented populations.
Investigating Health Self-Management among Immigrant College Students with Depression
1University of North Carolina, Chapel Hill; 2Indiana University, Bloomington; 3College of Westchester; 4University of Pittsburgh; 5University of Washington; 6University of Maryland, College Park; 7University of California, Irvine
Digital tools for health hold a lot of promise in terms of empowering individuals to take control over their health and improving access to care. This may be especially critical for marginalized individuals, such as immigrant college students, and those who face stigmatizing conditions, such as depression. However, research is limited on how these tools fit into users’ existing practices around health management. In order to address this gap, we first investigate existing practices by focusing on a specific population: college students with depression ranging from immigrant generation 1 to 2.5. This group is important to study as they are at an increased risk for depression but may be less likely to access traditional treatment. We present results about their practices around health self-tracking and digital tools specific to depression management. Based on a survey of 83 participants, we found that although students with depression across these various immigrant generations engage in health self-tracking (94%), few track mental health indicators and most do not use mobile apps (81.9%) or other online resources (86.7%) to help with their depression. Those that do use apps and online resources offer insights into their depression management needs.
Proposing “Mobile, Finance, and Information” Toolkit for Financial Inclusion of the Poor in Developing Countries
1University of Tennessee at Knoxville, United States of America; 2Central University of Gujarat, India
Since 2015, the Government of India has been designing policies for transforming the country with over 400 million unbanked adults into a cashless economy so that a majority of financial transactions can be carried over mobile devices, the most widely used information and communication technology in the country. However, over 200 million adults earning less than $2 a day have a low or little mobile, financial, or information literacy. This short paper reports a newly proposed interdisciplinary, six-step toolkit operationalized using a survey questionnaire, focus group prompts, and hands-on training for developing mobile, financial, and information literacy among the poor in developing countries like India. Implications for public libraries, governments, and the poor in developing countries and beyond are discussed at the end.