Conference Agenda
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04 SES 03 D: Family Voices in Inclusive Education: Identifying Barriers and Shaping Support
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04. Inclusive Education
Paper Invisible Expertise – Parental Involvement in Educational Decision-making regarding Challenging Behaviour Ghent University, Belgium Presenting Author:Within the Flemish educational system, student behaviour has emerged as a particularly pressing concern (Flemish Government, 2025). In response to the apparent increase in so‑called “undesirable behaviour” and the rise in school dropout, the Flemish Minister of Education introduced the action plan “Wel-Behaved: From Undesirable Behaviour to Learning-Supported Behaviour” (Flemish Government, 2025). One provision of this plan is the expectation that schools clearly articulate what they require from parents in their specific role and translate these expectations into concrete measures. In doing so, the plan implicitly links the management of challenging behaviour to parental responsibility, while leaving the operationalisation of parental involvement to individual schools (Flemish Government, 2025). The plan does not take into account that the insights of parents of children with challenging behaviour can counterbalance deficit-oriented and individualised perspectives, providing schools with nuanced information that may otherwise be overlooked (Fluyt et al., 2025; MacLeod et al., 2017). In practice, schools often operate from a one-dimensional notion of ‘partnership’ that primarily serves institutional needs rather than equally reflecting parental perspectives (Reay, 1998). The theoretical framework of this study is grounded in the recognition of the value of parental experiential knowledge and its potential to serve as a counter-narrative to deficit-oriented interpretations of challenging behaviour in regular primary education (Daelman et al., 2024; Tabatabai, 2019). It subsequently offers a critical examination of the concept of ‘partnership’ within parent–professional collaboration in education, emphasising how normative expectations, power asymmetries, and epistemic inequalities continue to restrict meaningful parental participation, despite policy rhetoric that promotes collaboration (Hodge & Runswick-Cole, 2018; McLaughlin et al., 2008; Vandenbussche & Van de Putte, 2019). This study aims to investigate parental involvement in decision-making processes within regular primary education concerning their child who is labelled with challenging behaviour. To this end, the study applies a critical discourse analysis (Fairclough, 1992) on motivated reports within regular primary education written by the Student Guidance Centres (SGC) in Flanders, specifically about challenging behaviour. In addition, a focusgroup was convened with members of the SGC, and qualitative interviews were conducted with three parents who had personally undergone the process of drafting a motivated report for their child, to enrich the corpus and add a further layer of contextualisation to the data (Fairclough, 1992). The study aims to map how parental perspectives within collaborative processes are reflected in these reports, and what they reveal about current collaboration practices with parents in addressing challenging behaviour in primary education. Furthermore, it explores what these reports may indicate about broader societal understandings of parents, challenging behaviour, and parental collaboration in education. Methodology, Methods, Research Instruments or Sources Used This study investigates how parental input in collaborative processes is reflected in the motivated reports produced by Student Guidance Centres (SGCs). In Flanders, the SGC, in collaboration with the school and the parents, assesses the additional support required by both the student with specific educational needs and the school (Government of Flanders, 2024a). The motivated report details the measures already implemented by the regular school and outlines the educational, developmental, and support needs of the student, their parents, and the school team. To better understand the input of parents in collaborative processes about the child’s behaviour, 62 motivated reports with the primary support need of challenging behaviour were collected. To collect the motivated reports, four SGCs representing all educational networks in Flanders and located in both urban and rural areas were contacted, each contributing between ten and fifteen reports. The study makes use of a critical discourse analysis (CDA), defined by Joye and Maeseele (2022) as ‘a systematic, linguistic analysis of discourse in its social context’. CDA enables a detailed examination of the language used in the motivated reports, shedding light on how these texts are molded and shaped by the context beyond the linguistic choices of their author (Joye & Maeseele, 2022). The motivated reports produced by the SGC conceptualise challenging behaviour in primary education in specific ways and reflect the norms and values inherent in the discourse from which they emerge (Fairclough, 1992). Through language, they reveal or express underlying ideas and practices. The analytical framework for the critical discourse analysis draws on Fairclough’s dialectic-relational approach (Fairclough, 1992). Fairclough’s model encompasses three analytical dimensions: text, discursive practices, and wider social practices (Fairclough, 1992). These three dimensions are converted by the first author into four readings of the motivated reports. To enrich the corpus, a member check was conducted through a focus group with ten SGC staff members from six different SGCs. Subsequently, qualitative interviews were organized with three parents who had personally experienced the process of drafting a motivated report for their child, in which ‘challenging behaviour’ was identified as the primary support need. By involving practitioners and parents directly, their interpretations were integrated into the study, providing insights that extend beyond the immediate sample and adding a layer of contextualisation to the data. This approach aimed to assess whether the findings were recognizable to participants or required further nuance. Conclusions, Expected Outcomes or Findings The findings from this study show three emerging discourses that structure parental involvement in decision‑making within regular primary education concerning their child who is labelled with challenging behaviour. First, a hollow discourse of collaboration emerges: “collaboration” appears as a recurrent need in parents’ accounts and as a thematic anchor in school documents, yet it operates as an empty signifier. There is scant specification of how collaboration should be enacted, who is included, and how responsibilities are shared, rendering the term largely rhetorical rather than operational. Second, a normalising discourse governs the treatment of family and contextual information: such information is incorporated predominantly when it departs from presumed norms, and is accompanied by implicit value judgements that induce parental culpability. These judgements are obscured by ostensibly factual descriptions articulated with high modality in motivated reports. Third, an objectifying discourse is sustained through the use of technical (para)medical jargon expressed with high modality, which confers a professional imprimatur that purports to transcend subjectivity while, in practice, limiting parents’ capacity to exert equivalent influence. Within the genre of the motivated report, a child‑focused accountability document used to initiate support, the emphasis on what is not working foregrounds deficit framings, and parental input is frequently positioned as confirmatory evidence rather than as co‑constructed analysis. Taken together, these discourses reproduce and legitimise power asymmetries between parents and education professionals. In the discussion, we consider what is required to set these relations in motion towards the inclusion and recognition of parental knowledge on an equal footing with expert knowledge, and to enable the possible interplay between the two within decision-making processes in regular primary education, such as these. References Daelman, S., Van de Putte, I., & De Schauwer, E. (2024). “My Story is Not a Pink Story”: Enabling Care in a Research-Creation Practice with Parents of a Disabled Child in Inclusive Trajectories. Critical Arts, 38(4-5), 211-226. https://doi.org/10.1080/02560046.2024.2357345 Fairclough, N. (1992). Discourse and social change Cambridge: Polity Press. http://lib.ugent.be/catalog/rug01:000270564 Flemish Government. (2025). Actieplan Goed Gedragen: Van ongewenst gedrag naar leerondersteunend gedrag. https://www.vlaanderen.be/vlaamse-regering/beslissingen-van-de-vlaamse-regering/actieplan-goed-gedragen Fluyt, L., Delafontaine, J., & Nijs, S. (2025). Stakeholders’ perspectives on the decision-making process regarding reasonable accommodations for students with SEN: a concept mapping study. International Journal of Inclusive Education, 29(6), 821-844. https://doi.org/10.1080/13603116.2023.2223633 Hodge, N., & Runswick-Cole, K. (2018). “You Say… I Hear…”: Epistemic Gaps in Practitioner-Parent/Carer Talk. In K. Runswick-Cole, T. Curran, & K. Liddiard (Eds.), The Palgrave Handbook of Disabled Children’s Childhood Studies (pp. 537-555). Palgrave Macmillan UK. https://doi.org/10.1057/978-1-137-54446-9_33 Joye, S., & Maeseele, P. (2022). Critical discourse analysis: the articulation of power and ideology in texts. In Qualitative data analysis: key approaches (pp. 17-49). SAGE. MacLeod, K., Causton, J., Radel, M., & Radel, P. (2017). Rethinking the Individualized Education Plan process: voices from the other side of the table. Disability & Society, 32, 1-20. https://doi.org/10.1080/09687599.2017.1294048 McLaughlin, J., Goodley, D., Clavering, E., & Fisher, P. (2008). Families Raising Disabled Children: Enabling Care and Social Justice. Palgrave Macmillan London. https://doi.org/https://doi.org/10.1057/9780230583511 Reay, D. (1998). Class work: Mothers' involvement in their children's primary schooling (1st ed.). Routledge. https://doi.org/10.4324/9781003419662 Tabatabai, A. (2019). Neoliberalism and the Fight for the Child: Narratives of Queer Mothering. In (pp. 231-243). https://doi.org/10.1108/S1479-354720190000011027 Vandenbussche, H., & Van de Putte, I. (2019). Dynamic Collaboration with Parents: Express Train or Slow Train? In Full Potential: Empowered Teaching in Diversity. Acco. http://hdl.handle.net/1854/LU-8698193 04. Inclusive Education
Paper Parents’ Perspectives on the Implementation of Inclusive Education in All-Day Schools in Lithuania 1: University of Turku, Finland; 2: University of South-Eastern Norway, Norway; 3: Mykolas Romeris University, Lithuania Presenting Author:Objectives and Purposes This study investigates parents’ perspectives on the implementation of inclusive education in All-Day Schools (ADS) in Lithuania (Dudaitė et al., 2019), aiming to develop an empirically grounded model of inclusive ADS. While inclusive education is widely studied in Lithuania, most studies focus on teachers’ or professionals’ viewpoints (Boyle et al., 2023), often overlooking the voice of parents. This research addresses that gap, highlighting parental perceptions as essential for understanding how inclusion is realized in practice. Theoretical Framework and Background The implementation of inclusive education requires not only systemic support, but also a coherent conceptual framework that addresses the diversity of learners and the complexity of educational contexts. This study is grounded in a holistic model of inclusive education (Teschers, 2020), which comprises five interrelated dimensions: a holistic approach to teaching, a whole-child perspective, a whole-school approach (Ainscow, 2020; Guðjónsdóttir & Óskarsdóttir, 2016), a community perspective, and a systemic view. These dimensions are not isolated but mutually reinforcing, providing a theoretical foundation for understanding inclusion as a multi-layered phenomenon. In the context of All-Day Schools (ADS), this implies a necessary shift from fragmented practices toward a coherent model that addresses individual needs, ensures equal opportunities, and fosters collaboration. It is particularly important that the model being developed ensures opportunities for the inclusion of all groups of students, including those with special educational needs, whose participation is currently limited due to the non-compulsory nature of ADS and schools’ lack of readiness to accommodate them (Dudaitė et al., 2019). Research Questions and/or Hypotheses This study aims to analyse parents’ perspectives on the implementation of inclusive education in All-Day Schools (ADS) and to assess how current ADS models reflect the principles of inclusion in practice. Accordingly, the following research questions are posed: (RQ1) How do parents view the implementation of inclusion principles in the ADS their children attend? (RQ2) How parents evaluate child’s well-being at school (emotional well-being, social inclusion, and academic self-concept)? (RQ3) What conditions, according to parents, are necessary for the meaningful and comprehensive implementation of inclusive education in ADS? Methodology, Methods, Research Instruments or Sources Used Data, Methods, and Modelling Approaches This presentation introduces the quantitative analysis of parent survey data, conducted as part of a broader mixed-methods study within the Project (Number) and addressing a representative sample of parents in Lithuania. The study involved 2,936 parents from various Lithuanian regions whose children attended ADS groups. The sample represents diverse social, economic, and geographic contexts, ensuring the inclusivity and variability of data. A standardized questionnaire was used, covering demographic variables, characteristics of ADS implementation, parents’ evaluations of their children’s well-being (emotional well-being, social inclusion, and academic self-concept), implementation of inclusion principles, and suggestions for future development (Boyle et al., 2013; Venetz et al., 2015). The data were analysed using descriptive statistics (means, standard deviations), with further regression analysis planned to identify associations between key variables. Conclusions, Expected Outcomes or Findings Results and Discussion The study results reveal that most children attend public schools (98.3%), with the predominant model being extended-day programs offered on a non-mandatory basis (73%). First (RQ1), parents generally evaluated inclusion-related aspects positively, especially emphasizing equal treatment of children regardless of their family’s social status, meaningful after-school activities, and school–parent cooperation, reflecting findings from broader European studies on effective ADS practices (Pfeifer & Holtappels, 2008). Relatedly, we found that support services are most provided by speech therapists, teaching assistants, and special education teachers. However, 2.8% of parents noted that support was needed but not provided, revealing an existing gap in service accessibility. Second (RQ2). high average scores (ranging from 3.87 to 4.10 on a 5-point scale) indicated a broadly positive perception of inclusiveness in the ADS context. Children’s emotional well-being (M = 3.48), social inclusion (M = 3.55), and academic self-perception (M = 3.29) showed encouraging trends, suggesting that ADS can be a supportive environment for children’s holistic development. Third (RQ3), concerning conditions for meaningful implementation of inclusive education in ADS, overall mean scores ranged from 3.98 to 4.27 on a 5-point scale. The points rated as still requiring more attention were provision of support to meet individual learning needs, ensuring each student’s progress and achievement, and developing effective ways to organize education. Despite these preliminary findings, further analyses are planned to investigate how parents’ evaluations of the implementation of inclusion in ADS vary depending on the type of school, the child’s individual needs, the availability of support services, and the organisational model of the ADS. Also, how these aspects are interrelated in correlational and regression analyses. References References Ainscow, M. (2020). Promoting inclusion and equity in education: Lessons from international experiences. Nordic Journal of Studies in Educational Policy, 6(1), 7–16. https://doi.org/10.1080/20020317.2020.1729587 Boyle, C., Barrell, C., Allen, K.-A., & She, L. (2023). Primary and secondary pre-service teachers’ attitudes towards inclusive education. Heliyon, 9(11), Article e22328. https://doi.org/10.1016/j.heliyon.2023.e22328 Boyle, C., Topping, K., & Jindal-Snape, D. (2013). Teachers’ attitudes towards inclusion in high schools. Teachers and Teaching, 19(5), 527–542. https://doi.org/10.1080/13540602.2013.827361 Dudaitė, J., et al., (2019). Visos dienos mokykla: modeliai ir įgyvendinimo prielaidos: Mokslo studija [All-day school: Models and implementation]. Vilnius: Mykolo Romerio universitetas. Guðjónsdóttir, H., & Óskarsdóttir, E. (2016). Inclusive education, pedagogy and practice. Science Education Towards Inclusion, 7–22. Nova Science Publishers, Inc. Pfeifer, M., & Holtappels, H. G. (2008). Improving learning in all-day schools: Results of a new teaching time model. European Educational Research Journal EERJ, 7(2), 232–242. https://doi.org/10.2304/eerj.2008.7.2.232 Teschers, C. (2020). Proposing a holistic inclusive education model for policy, curriculum and classroom development. New Zealand Journal of Teachers’ Work, 17(1and2), 73–87. https://doi.org/10.24135/teacherswork.v17i1and2.299 Venetz, M., Zurbriggen, C. L. A., Eckhart, M., Schwab, S., & Hessels, M. G. P. (2015). The Perceptions of Inclusion Questionnaire (PIQ). English Version. www.piqinfo.ch 04. Inclusive Education
Paper Navigating Preschool Inclusion: A Family Perspective on Autism and Early Childhood Education Bielefeld University, Germany Presenting Author:The preschool years constitute a unique developmental period in which children’s cognitive, emotional, and social capacities rapidly emerge, laying the foundational structures that shape later life experiences. Early education for children with special educational needs has determining effects on both individual development and the quality of life of families. In this context, inclusive education stands out as an educational philosophy that enables children with special needs to participate in learning environments alongside their peers; thus, children gain opportunities for belonging, safe inclusion, interaction, and full participation with typically developing peers (Fleer, 2010; Hyde et al., 2017). Research shows that children with special needs who have access to inclusive preschool education demonstrate more positive developmental outcomes and that the quality of life of families increases (Purcell et al., 2006). Inclusive education is not limited to the recognition of individual differences; the values of the school community, instructional practices, and intra-team collaboration must be restructured in a way that prioritizes the learning outcomes of all children (Florian, 2017; Florian). However, in practice, numerous challenges such as lack of teacher support, knowledge, and skills, as well as environmental and institutional limitations, directly affect the effectiveness and sustainability of inclusivity (Lee & Recchia, 2016; Warren et al., 2016; Wen et al., 2011). At this point, the role of families is critically important. Families, as the first and most permanent sources of education for children, play a central role in learning processes; therefore, active participation of families in inclusive practices is a determining factor for a child's school success and overall development (Akyol, 2025). Parental involvement increases children's motivation and performance at school and creates positive effects on the quality of life of families (Epstein & Sanders, 2006; Purcell et al., 2006). However, levels of participation vary according to socioeconomic, cultural, and ethnic contexts; therefore, context-sensitive strategies should be developed in family–school interactions (Musendo et al., 2024). For inclusivity to be effective, individual factors such as teacher competencies, in-service training, guidance, and team collaboration, as well as environmental and institutional supports, are necessary. Environmental elements such as legislation, funding, class size, and physical arrangements can act as facilitators or obstacles to implementation (Warren et al., 2016; Wen et al., 2011; Pearson, 2015). The existing literature shows that inclusive preschool practices provide positive effects on children with special needs and their families, but that teacher competencies, resources, and environmental conditions are significant determinants in practice (Purcell et al., 2006; Lee & Recchia, 2016; Kemp, 2016). This study aims to examine the experiences of a parent of a child diagnosed with ASD who receives inclusive education in the preschool period, thereby addressing the gap in the literature where family perspectives have been relatively less deeply explored and contributing to the understanding of facilitating and hindering factors in practice through family observations. Specifically, the study aims to produce concrete recommendations for practitioners, school administrators, and policymakers by focusing on parents’ experiences regarding the inclusion process, the supportive and hindering factors they observe, and insights derived from these experiences. This study seeks to answer the following questions: How is the process of starting inclusive education experienced for a child diagnosed with autism in the preschool period? How do the school environment, teacher and peer attitudes, and family–school collaboration affect the child’s development? What are the challenges experienced by the family, and what coping strategies and support mechanisms do they employ? From the parents’ perspective, what factors facilitate and hinder inclusive education? Methodology, Methods, Research Instruments or Sources Used Research Design This study aims to examine in depth the experiences of a parent who actively participates in the educational process of a child diagnosed with Autism Spectrum Disorder (ASD) and maintains regular communication with the school during preschool inclusive education. Since inclusive education practices vary depending on parental experiences, school–family interaction, and contextual conditions, a single case study design was adopted to explore the process within its natural context (Stake, 1995). The case study design is a robust qualitative approach that allows for holistic and in-depth examination of a phenomenon within its real-life context (Schrank & Mayer, 2013). Although it does not aim to produce generalizable results, this approach provides researchers and practitioners with new perspectives and enables the questioning of existing practices. As noted by Donmoyer (2008), case studies often contribute not by providing direct answers but by generating new and meaningful research questions. Given that inclusive practices are shaped by numerous variables, examining parental experiences through a single case was considered meaningful. Data Collection The primary data source of the study consisted of semi-structured interviews conducted with the parent. The interviews were carried out at different times, lasted approximately three hours in total, and were audio-recorded. The interview questions were designed to cover the child’s entry into preschool education, adaptation to inclusive practices, collaboration with teachers and the school, peer relationships, and the parent’s emotional experiences. To support the data, a parent diary containing notes shared by the parent regarding the child’s educational process was examined; these data were selectively used to support the interview findings. Data Analysis The obtained data were analyzed using content analysis. This method aims to systematically organize the data according to concepts and themes in order to form a meaningful whole. The analysis process was carried out in four stages: coding the data, generating themes, organizing codes and themes, and defining and interpreting the findings (Creswell, 2013). The audio recordings of the interviews were transcribed verbatim by the researcher prior to analysis. During the transcription process, no changes were made to the statements of either the participant or the researcher, and the interviewer–interviewee sequence was preserved. To ensure the reliability of the analysis results, the raw data and the derived findings were presented to an independent expert researcher, and the findings were finalized after reaching consensus. Conclusions, Expected Outcomes or Findings This study examines the experiences of a parent of a preschool-aged child with ASD in inclusive education in relation to inclusive education, framed around three main themes: the diagnosis and placement process, school-based experiences and collaboration, and family life, emotional experiences, and coping strategies. The first theme showed that the diagnostic process was complex, lengthy, and largely parent-focused. The mother noticed her child’s developmental differences early; yet limited healthcare access and long assessment waits prolonged the diagnostic process. Initial meetings with kindergartens did not provide structured guidance, and the family managed the diagnosis and school placement process through personal research and interactions with other parents of children with special needs. The second theme, focusing on school-based experiences and collaboration, indicated that teachers and support staff lacked sufficient knowledge and expertise in inclusive education. During the time spent at school, challenges encountered by the child were often addressed by seeking guidance from the parent rather than implementing the necessary interventions and strategies independently, which limited the child’s academic, social, and emotional development. The family’s immigrant background and the child’s limited language proficiency further created communication barriers, making integration more difficult. The third theme centered on family life and emotional experiences. The mother noted that her spouse initially struggled to accept the child’s special needs, which led to communication problems and conflicts within the family. The mother’s lack of financial independence and limited social support during this process placed primary responsibility on her, increasing her emotional burden. She expressed feelings of anger, frustration, and being misunderstood throughout the process. Overall, the findings indicate that effective inclusive education is not limited to placement alone. Early identification, teachers’ and support staff’s knowledge and competence in special education, strong school-family collaboration, and comprehensive family support are critical factors for the success of the inclusion process. References Akyol, T. (2025). Voices of parents in Turkey on participation rights of children with disabilities. Child and Adolescent Social Work Journal, 1–12. https://doi.org/10.1007/s10560-025-01050-w Creswell, J. W. (2013). Qualitative inquiry and research design: Choosing among five approaches (3rd ed.). SAGE Publications. Donmoyer, R. (2000). Generalizability and the single-case study. In R. Gomm, M. Hammersley, & P. Foster (Eds.), Case study method: Key issues, key texts (pp. 45–68). SAGE Publications. Epstein, J. L., & Sanders, M. G. (2006). Prospects for change: Preparing educators for school, family, and community partnerships. Peabody Journal of Education, 81(2), 81–120. https://doi.org/10.1207/S15327930pje8102_5 Fleer, M., & Hedegaard, M. (2010). Early learning and development: Cultural-historical concepts in play. Cambridge University Press. Florian, L. (2017). The heart of inclusive education is collaboration. Pedagogika, 126(2), 248–253. https://doi.org/10.15823/p.2017.32 Hyde, M., Carpenter, L., & Conway, R. N. (Eds.). (2017). Diversity, inclusion and engagement. Oxford University Press. Kemp, C. R. (2016). Early childhood inclusion in Australia. Infants & Young Children, 29(3), 178–187. https://doi.org/10.1097/IYC.0000000000000062 Lee, Y. J., & Recchia, S. L. (2016). Zooming in and out: Exploring teacher competencies in inclusive early childhood classrooms. Journal of Research in Childhood Education, 30(1), 1–14. https://doi.org/10.1080/02568543.2015.1105330 Musendo, D. J., Zuurmond, M., Nkhonjera, T. A., Polack, S., & Patel, D. (2024). “It is my responsibility to escort my child to school…” Factors influencing parental involvement in educating children with disabilities in Malawi. Social Sciences, 13(12), Article 654. https://doi.org/10.3390/socsci13120654 Pearson, E. C. (2015). Achieving inclusion by targeting children and families in hard-to-reach communities: Innovations from Cambodia and the Philippines. Childhood Education, 91(6), 411–419. https://doi.org/10.1080/00094056.2015.1114786 Purcell, M. L., Turnbull, A., & Jackson, C. W. (2006). Linking early childhood inclusion and family quality of life: Current literature and future directions. Young Exceptional Children, 9(3), 10–19. https://doi.org/10.1177/109625060600900302 Schrank, S., & Mayer, H. (2013). Das qualitative Case-Study-Design: Komplexe pflegerische Phänomene verstehen. ProCare, 18(4), 20–24. https://doi.org/10.1007/s00735-013-0107-1 Stake, R. E. (1995). The art of case study research. SAGE Publications. Warren, S. R., Martinez, R. S., & Sortino, L. A. (2016). Exploring the quality indicators of a successful full-inclusion preschool program. Journal of Research in Childhood Education, 30(4), 540–553. https://doi.org/10.1080/02568543.2016.1214651 Wen, X., Elicker, J. G., & McMullen, M. B. (2011). Early childhood teachers’ curriculum beliefs: Are they consistent with observed classroom practices? Early Education and Development, 22(6), 945–969. https://doi.org/10.1080/10409289.2010.507495 | ||