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Session Overview
Session
04 SES 04 A: The Voices of Children and Young People Regarding Education
Time:
Wednesday, 23/Aug/2023:
9:00am - 10:30am

Session Chair: Donatella Camedda
Location: Gilbert Scott, One A Ferguson Room [Floor 1]

Capacity: 100 persons

Paper Session

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Presentations
04. Inclusive Education
Paper

Whose Voices Are Being Heard? A Scoping Review of Research on School Experiences among Persons with Autism and ADHD

Shruti Taneja Johansson

University of Gothenburg, Sweden

Presenting Author: Taneja Johansson, Shruti

With the 1989 UN Convention on the Rights of the Child, children and young people were re-conceptualized as competent social actors and citizens, whose voices should be listened to. This global endorsement of children’s right to be included in decision-making in matters affecting their lives has since also been widely adopted by researchers and is reflected in the plethora of literature and theorizing on the topic as well as in the practice of doing research with children. A group that until recently has been invisible here are children with disabilities. Driven by a deficit discourse, having a disability has been implicitly assumed to imply impairment and, thus, incompetency and incapacity as regards participating in research (Curran and Runswick-Cole 2014), rendering children with disabilities unvalued research participants (Cocks 2008). Parents’ and teachers’ perspectives were taken as a proxy for disabled children’s perspectives, leaving children with disabilities unheard in the research (Stafford 2017).

The past decade, however, has seen an extension of this autonomy to the disabled child – a development that recognises the potential of the child with disabilities to make valid and valuable contributions in all aspects of life (e.g., Twomey and Carroll 2018). Spurring this change is the UN Convention on the Rights of Persons with Disabilities (2006). While disabled children’s voices are gaining visibility in the research (Rannveig 2015), we know little about whose voices are being included.

The focus of this presentation is on two disabilities: autism and attention deficit/hyperactivity disorder (ADHD). Diagnostic rates for both these groups have seen a rapid increase in the last decades (Russell et al. 2022; Rydell et al. 2018). They have also both been central in school debates focussing on the challenges to inclusion and participation, particularly in the Global North (Pellicano, Bölte, and Stahmer 2018). Students with these diagnoses have been shown to perform worse academically, have higher rates of school dropout and lower levels of education than their non-disabled peers (Kent et al. 2011). Despite the fact that the number of children diagnosed with autism and ADHD is increasing and that research has highlighted the difficulties encountered by this group in school, many argue that they have been given limited opportunities to express their views about their own experiences of school (Humphrey and Parkinson 2006; Taneja Johansson 2021).

The purpose of the present scoping review is to critically examine empirical research that draws on the first-person school experiences of students with autism and ADHD as well as to map whose voices are being heard and where the current knowledge gaps are. More specifically, it aims to analyse the key characteristics of this body of research in relation to the publication context and research methodology. The following research questions are examined: 1) What type of journal is the article published in?; 2) Where is the research situated geographically?; 3) What sampling routes are used?; 4) What are the characteristics of participants are included in the research, specifically regarding disability type, school year, gender, ethnicity, socioeconomic background?; 5) Which qualitative research designs and methods are used in the studies?

The intention of the present scoping review is not to provide a description of the summative research findings or to assess the quality of the studies in the field, but instead to identify which voices are being foregrounded in the research, the goal being to try to understand the sources of the current knowledge base and determine directions for future research (Pham et al., 2014).


Methodology, Methods, Research Instruments or Sources Used
Studies were identified through a systematic scoping review of research published between January 2000 to December 2021 in four electronic databases and a subsequent ancestry search to locate articles missed in the database search. Scoping reviews are a useful tool for effectively mapping how research on a certain topic has been designed and conducted (Munn et al. 2018) and was applied in the present study to assist in identification of certain characteristics in the articles and their mapping, reporting and discussion. Development of the protocol for the review was guided by the procedure outlined in the Joanna Briggs Institute Reviewers Manual (Peters, Godfrey, and McInerney 2017).

A search strategy was developed and Key search terms were identified by the author using the PICo framework – population, the phenomenon of interest and the context (Lockwood, Munn, and Porritt 2015). All searches included at least one identifier for autism or ADHD (e.g., autism, Asperger’s), linked to at least one identifier for perspective (e.g., view, experience), and one for context (e.g., school, education). The key search terms were developed through an iterative process. The databases were selected for their relevance to the purpose of the present scoping review, which had a clear focus on the school setting.

Inclusion and exclusion criteria were created to guide assessment of an article’s relevance to the topic of the present review. An article had to meet the following criteria to be included in the final dataset: a) an empirical study, b) at least 50% of the sample were people with autism and/or ADHD, c) a research focus on school or school-age children, d) inclusion of first-person perspectives, experiences, narratives or views on school-related issues, and e) use of a qualitative data collection method with people with autism and/or ADHD.

The studies that met the inclusion criteria were then systematically mapped and analysed. This was a two-step process. Step 1 involved extraction of the information as provided by the author, and Step 2 coding of that information based on a pre-determined classification or conventional content analysis (Hsieh and Shannon 2005). A data extraction sheet was developed to chart information on the following main categories: 1) descriptive characteristics of the study, 2) sample-related characteristics, and 3) method-related characteristics.

Conclusions, Expected Outcomes or Findings
Fifty-eight articles met the inclusion criteria. The results show an increase in including first-person experiences of school in educational research in the last six years. The autism voice dominated over ADHD and was strongly skewed towards the academically able group. There was an overrepresentation of boys and secondary school children across the studies. Characteristics such as the child’s social class, ethnicity and socioeconomic background were largely neglected, with diagnosis-related events being foregrounded. Interviewing was the main method used, and student perspectives were often accompanied by other data sources. The presentation concludes with a discussion on the silencing of already marginalized sub-groups and the ethical responsibility we as researchers have in relation to the knowledge we create, the discourse that it perpetuates and the stereotypes it reinforces
References
Cocks, A. 2008. "Researching the Lives of Disabled Children: The Process of Participant Observation in Seeking Inclusivity."  Qualitative social work 7 (2):163-80.
Curran, T., and K. Runswick-Cole. 2014. "Disabled children's childhood studies: a distinct approach?"  Disability & society 29 (10):1617-30.
Humphrey, N., and G. Parkinson. 2006. "Research on interventions for children and young people on the autistic spectrum: a critical perspective."  Journal of Research in Special Educational Needs 6 (2):76-86.
Kent, K. M., W.E. Pelham, B. SG. Molina, M.H. Sibley, D.A. Waschbusch, J. Yu, E.M Gnagy, A. Biswas, D.E. Babinski, and K.M. Karch. 2011. "The academic experience of male high school students with ADHD."  Journal of abnormal child psychology 39 (3):451-62.
Lockwood, C., Z.Munn, and K.Porritt. 2015. "Qualitative research synthesis: methodological guidance for systematic reviewers utilizing meta-aggregation."  JBI Evidence Implementation 13 (3):179-87.
Munn, Z., M.D.J. Peters, C.Stern, C.Tufanaru, A.McArthur, and E.Aromataris. 2018. "Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach."  BMC medical research methodology 18 (143):1-7.
Pellicano, L., S.Bölte, and A.Stahmer. 2018. "The current illusion of educational inclusion."  Autism 22 (4):386-7.
Peters, M., C.Godfrey, and P.McInerney. 2017. "Chapter 11: Scoping Reviews, Joanna Briggs Institute Reviewer Manual."  Adelaide, SA: The Joanna Briggs Institute.
Pham, Mai T., Andrijana Rajić, Judy D. Greig, Jan M. Sargeant, Andrew Papadopoulos, and Scott A. McEwen. 2014. "A scoping review of scoping reviews: advancing the approach and enhancing the consistency."  Research synthesis methods 5 (4):371-85. doi: 10.1002/jrsm.1123.
Rannveig, T. 2015. Childhood and disability in the Nordic countries : being, becoming, belonging. Basingstoke: Palgrave Macmillan.
Russell, G., S.Stapley, T.Newlove‐Delgado, A.Salmon, R.White, F.Warren, A.Pearson, and T.Ford. 2022. "Time trends in autism diagnosis over 20 years: a UK population‐based cohort study."  Journal of child psychology and psychiatry 63 (6):674-82.
Rydell, M., S. Lundström, C. Gillberg, P. Lichtenstein, and H. Larsson. 2018. "Has the attention deficit hyperactivity disorder phenotype become more common in children between 2004 and 2014? Trends over 10 years from a Swedish general population sample."  Journal of child psychology and psychiatry 59 (8):863-71.
Stafford, L. 2017. "'What about my voice': emancipating the voices of children with disabilities through participant-centred methods."  Children's geographies 15 (5):600-13.
Taneja Johansson, Shruti. 2021. "Looking Back on Compulsory School: Narratives of Young Adults with ADHD in Sweden."  Emotional & Behavioural Difficulties 26 (2):163-75.
Twomey, M., and C. Carroll. 2018. Seen and heard: Exploring participation, engagement and voice for children with disabilities. Peter Lang.


04. Inclusive Education
Paper

Exploring The College Experience Of Students With Intellectual Disabilities Through Photovoice

Donatella Camedda1, Sabine Harter-Reiter2

1Trinity College Dublin, Ireland; 2University of Education Salzburg, Austria

Presenting Author: Camedda, Donatella; Harter-Reiter, Sabine

Society is increasingly acknowledging diversity as a common aspect of humanity, in all its forms. This has been reflected in educational research too, where the interest in diversity has grown over time. However, the trend in researching diversity is still very much focused on doing research on certain groups, i.e. people with intellectual disabilities, rather than embracing such diversity in the research design itself (Walmsley, 2001). Over the past few decades, researchers in the field of inclusive education have started reshaping the research landscape by developing diverse forms of inclusive research approaches to increase the active engagement of certain groups in the research process (Walmsley et al., 2018).

This paper presents a participatory action research project on intellectually disabled students’ college experience. Sitting within the framework of inclusive research (Nind, 2020) and adopting a social model of disability, the project supports the empowerment of students as co-researchers around themes that they feel are relevant to their life as university students. The participants are students with intellectual disabilities attending a 2-year course at a major university in Ireland. Designed as part of a module on human rights, this project is based on principles of research-based teaching (Brew, 2012) and aims to bridge the applied learning of the UDHR article 26 ‘right to education’ with the experience of inclusive research using the photovoice method. The main aim of this project is to promote inclusivity at the institution level by responding to the continuous need for development or change (Mertler, 2019), creating knowledge for a further step in establishing a diversity-sensitive approach. Another aim is to explore how the combination of teaching and research can create a safe space for upcoming accounting student experiences and have a high awareness of unbalanced power relations in teaching/learning situations. This perspective should help to set up the project as a sustainable tool in inclusive postsecondary education.

The research objectives are:

  • to strengthen students’ self-advocacy and promote self-determination, with an impact on their current education and other life areas.

  • To voice students’ experiences with a wider impact on the wider college community and society

The research questions are as follows:

  • How do students with intellectual disabilities experience university?

  • What elements of photovoice are helpful to students in voicing their experience?

  • Is inclusive research-based teaching effective in promoting applied learning of human rights?

The project uses a visual participatory method called photovoice to express and document students’ experiences in college. Based on eight weekly sessions (2h) held within a human rights module between January and April 2023, participants work with two lecturers/facilitators to explore what the right to education looks like in their college experience. During the sessions, participants agree on what themes they want to focus on and take photographs to help document, reflect upon, and communicate issues of concern while stimulating social change. The sessions provide guidance and support in developing some basic visual literacy and photography knowledge while leaving decision-making around the subjects of the photographs to each participant. Following the session, a photography exhibition is co-organised with participants to engage with the wider college community and create a space for understanding and dialogue around inclusion in the university. Full ethical approval has been obtained from the institution prior to the start of the project.

In this paper, the authors will discuss the different phases and highlights of the project and will present the main findings of the project contributing to the wider conference debates on diversity in educational research.


Methodology, Methods, Research Instruments or Sources Used
The project fits within the participatory action research framework and applies a qualitative and visual method named photovoice. This approach allows students with intellectual disabilities to be actively involved in the research process and act as co-researchers.  The research design is based on a practice/inquiry combination in the form of research-based teaching through transformative social learning with a change agenda (Mertler, 2019). Knowledge is produced as well as used and occurs in the participants´ contexts and nurtures learning among everyone involved (Tandon, 1981 in Latz, 28, 2017). One target of this research is to create an environment in which participants give and get valid information as well as have the opportunity to make free and informed choices – including the choice to participate (Latz, 2017). Choosing this methodological approach is a critical component for us as academic researchers to make sure to highlight their experiences, perspectives, and stories from an authentic point of view. The project is structured in 8 sessions within a human rights module and includes a final exhibition to the wider college community to “oscillate between the private and public world” (Latz, 2017). Throughout the sessions, participants are invited to take part in targeted activities based on the photovoice method and facilitated by the two researchers/lecturers. The supported sessions aim to build up knowledge and confidence in using photography as a means of expression, participants will identify what themes to focus on and will take pictures with their phones to work out the question “How do I experience college”. The photographs offer stimuli to identify what aspects of the college experience are important to the participants.    

We will generate a multi-method collection of data material: notes, several key tasks (photo reading; photo treasure hunt...,), group discussion, questionnaire (final decisions about that are still a work in progress), and of course the transcripts of the narratives made out of the photos. An inductive qualitative narrative analysis will be the data baseline to answer the research questions. For some of the databases, a qualitative content analysis is useful, some databases, especially the group discussions, will need a deeper glance at process structures and prototypes of narratives and will be analyzed by a narrative method like Bohnsack´s (2014, 2010) documentary method which is a procedure of reconstructive qualitative social research.

 

Conclusions, Expected Outcomes or Findings
As the project is in its initial stages, there are no set conclusions yet, but we expect to generate findings related to two main strands. The first strand regards the impact of students’ voices through photography and how this can inform an academic institution about its inclusivity.
The second strand focuses on the use of photovoice as a research-based teaching method and its value in future teaching situations.
Elements in both strands will provide answers to the research questions and we expect to provide evidence of the following:
Introduce the students to the model of ‘inclusive research  
Learn about the right to education through participatory and self-determined access.
Capture the student voice around their experience of inclusivity in the project institution.
Showcase the Photovoice project to the wider community within and beyond the university.
Empowerment through the method of photovoice as a means of self-advocacy
Keep a reflecting stance toward the power balance in the project as well as in the module itself (e.g., decision-making; assessment; outcomes)
 
Overall, this paper will provide an overview of the project and will present its main findings offering interesting viewpoints for further discussion among the conference audience. Issues related to diversity in research will be addressed from different angles and an account of research-informed teaching will be provided as a way to promote inclusion in higher education.

 


References
Allweiss, T., Perowanowitsch, M., Burtscher, R., & Wright, M. T. (2017). Participatory exploration of factors influencing the health of people with intellectual disabilities in an urban district: A Photovoice study. Proceeding of the 3rd International conference on Public Health, 237–245.

Bigby, C., Frawley, P., & Ramcharan, P. (2014). Conceptualizing inclusive research with people with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 27(1), 3-12.

Bohnsack, R. (2014). Rekonstruktive Sozialforschung: Einführung in qualitative Methoden (9., überarbeitete und erweiterte Auflage). Verlag Barbara Budrich.

Bohnsack, R., Pfaff, N., & Weller, W. (Hrsg.). (2010). Qualitative Analysis and Documentary Method in International Educational Reserarch. Barbara Budrichs Publishers.

Brew, A. (2012). Teaching and research: New relationships and their implications for inquiry-based teaching and learning in higher education. Higher education research & development, 31(1), 101-114.

Dillon, M. (2014). A Foucauldian analysis of power relations in an action research study. Action Research, Vol. 12(2), 209–223.

Freire, P. (2017). Pedagogy of the Oppressed (M. Bergman Ramos, Übers.; Published in Penguin Classics 2017). Penguin Books.

Hartung, S., Wihofszky, P., & Wright, M. T. (Hrsg.). (o. J.). Partizipative Forschung. Ein Forschungsansatz für Gesundheit und seine Methoden. Springer VS.

Latz, A. O. (2017). Photovoice Research in Education and Beyond: A practical guide from theory to exhibition. Routledge, Taylor & Francis Group.

Mertler, C. A. (Hrsg.). (2019). The Wiley Handbook of Action Research in Education. John Wiley & Sons.

van Meer, P. (2022). Imaginal knowing in action research. Action Research, Vol.20(1), 10–26.

Nind, M. (2020). Inclusive Research. Bloomsbury

United Nations (1948). Universal declaration of human rights. https://www.un.org/en/about-us/universal-declaration-of-human-rights

Walmsley, J. (2001). Normalisation, emancipatory research and inclusive research in learning disability. Disability & Society, 16(2), 187-205.

Walmsley, J., Strnadová, I., & Johnson, K. (2018). The added value of inclusive research. Journal of Applied Research in Intellectual Disabilities, 31(5), 751-759.


04. Inclusive Education
Paper

Our Voice Matters: Children’s Perspective Regarding Their Inclusion

Sílvia Alves, Emília Costa, Manuela Sanches-Ferreira

inED - Center for Research and Innovation in Education, Escola Superior de Educação do Politécnico do Porto

Presenting Author: Alves, Sílvia

The global commitment to an inclusive school and consequent efforts by countries to implement inclusive policies has been followed by task forces investigating the factors that contribute to the successful implementation of this educational model, namely at the policies, schools and teachers’ levels (Connor & Cavendish, 2020). In this regard, the study of teachers' attitudes towards students with additional support needs, their self-efficacy and the variables that underlie the inclusive teacher profile has received increasing attention in the last two decades (e.g., Avramidis & Norwich, 2002). In addition, the social participation of students with support needs has also been under the focus of researchers, especially in the last decade (Koster et al., 2009; Bossaert et al., 2013; Avramidis et al., 2018), with several studies focusing mainly on the way they are accepted and the interactions they establish with their peers (Garrote et al., 2017; Hassani et al., 2022).

However, there are few studies that privilege the perspective of students with additional support needs (Connor & Cavendish, 2020). Listening to what students have to say about their school experience and inclusion is an essential source of information to increase the understanding of other educational actors about inclusive education (Keefe et al., 2006). Several studies refer to the power of the student's voice, not only to: 1) "enter" into their experience of inclusion and a sense of belonging within the school, but also to, 2) increase their involvement in their educational process, by promoting self-determination. Not involving students in decision-making about their learning can contribute to reducing their involvement (Dunleavy, 2008). However, little attention is paid to what these students have to say about their education, which seems to be an omission in the research (Schwab et al., 2018), considering the dominant discourse on the importance of student-centred education to value your voice.

This study aims to listen to the opinion of 3rd to 9th-grade students about their process of inclusion in the educational context. For this, we will study: a) the extent to which students participate in school activities, inside and outside the classroom; b) how they describe their social participation; c) how involved they feel in educational activities; c) the extent to which they feel that they are considered in decision-making about their educational process.


Methodology, Methods, Research Instruments or Sources Used
In the mixed-type research, two studies were carried out. Study 1, quantitative, aimed at describing the experience of inclusion of students with and without additional support needs between 8 and 16 years old, the Study 2, qualitative, deepens the theme together with students identified as being at risk of experiencing a negative educational experience.
Study 1: describe the experience of inclusion of 280 students aged between 8 and 16 (14 classes from 3rd to 9th grade), namely their participation in academic and social activities; the inclusive climate in the classroom; the feeling of belonging and self-determination. In addition, we analyzed to what extent the way in which students describe their inclusion in school varies according to demographic variables (age/year of schooling; gender) and academic performance (grades in Portuguese and mathematics). A set of sub-scales related to variables under analysis were used in data collection.
Study 2: students were selected after being identified by their classroom teachers as being at risk of social exclusion. Eight students with additional support needs responded to an interview aimed at gathering their opinion on different aspects of their school life: participation in activities within the classroom; opinion about leaving the classroom (where they prefer to receive extra support); what they feel when they have support inside and outside the classroom); how well they feel at school; level of participation in decisions about your educational process (is the student heard or does he/she participate in decision-making about intervention objectives, where to intervene...).

Conclusions, Expected Outcomes or Findings
Data are still under analysis. Preliminary findings indicate that students with additional support needs experience less sense of belonging to school than typically developing students.
Participation, belongingness and self-determination are the three main focuses of this project. The discussion will highlight the importance of teacher education in preparing future teachers to understand students beyond their academic achievement. Incorporating students' voices in education and accessing their experiences in schools is a way to monitor how inclusive education is being implemented. At the same time, this poses new challenges in the traditional power relationship between teachers and students, which will be discussed.

References
Avramidis, E., Avgeri, G., & Strogilos, V. (2018). Social participation and friendship quality of students with special educational needs in regular Greek primary schools. European Journal of Special Needs Education, 33 (2), 221-234.  10.1080/08856257.2018.1424779
Avramidis, E., & Norwich, B. (2002). Teachers’ Attitudes Towards Integration/inclusion: A Review of the Literature. European Journal of Special Needs Education, 17(2), 129–147. doi:10.1080/08856250210129056.
Bossaert, G., Colpin, H., Pijl, S.J., & Petry, K. (2013). Social participation of students with special educational needs in mainstream seventh grade. Procedia - Social and Behavioral Sciences, 93, 1952-1956, 10.1016/j.sbspro.2013.10.147
Connor, D. J. & Cavendish, W. (2020). ‘Sit in my seat’: perspectives of students with learning disabilities about teacher effectiveness in high school inclusive classrooms. International Journal of Inclusive Education, 24(3), 288-309, DOI: 10.1080/13603116.2018.1459888
Dunleavy, J. (2008). Listen up: Student voice and educational change. Canadian Education Association, 48(2), 31.
Garrote, A., Dessemontet, R. S., & Opitz, E. M. (2017). Facilitating the social participation of pupils with special educational needs in mainstream schools: A review of school-based interventions. Educational Research Review, 20, 12-23. doi: 10.1016/j.edurev.2016.11.001.
Hassani, S., Alves, S., Avramidis, E., & Schwab, S. (2022). The Circle of Friends intervention: a research synthesis. European Journal of Special Needs Education, 37(4), 535-553. DOI: 10.1080/08856257.2021.1911522
Keefe, E. B., Moore, V. M., & Duff, F. R. (2006). Listening to the Experts: Students with Disabilities Speak Out. Baltimore, MD: Paul H. Brookes.
Koster, M., Nakken, H., Pijl, S. J., & Van Houten, E. (2009). Being part of the peer group: A literature study focusing on the social dimension of inclusion in education. International Journal of Inclusive Education, 13(2), 117-140. doi: 10.1080/13603110701284680.
Schwab, S., Sharma, U., & Loreman, T. (2018). Are we included? Secondary students' perception of inclusion climate in their schools. Teaching and Teacher Education, 75, 31-39. https://doi.org/10.1016/j.tate.2018.05.016.


 
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